More stories

  • in

    The United States is witnessing the return of psychiatric imprisonment | Jordyn Jensen

    Across the country, a troubling trend is accelerating: the return of institutionalization – rebranded, repackaged and framed as “modern mental health care”. From Governor Kathy Hochul’s push to expand involuntary commitment in New York to Robert F Kennedy Jr’s proposal for “wellness farms” under his Make America Healthy Again (Maha) initiative, policymakers are reviving the logics of confinement under the guise of care.These proposals may differ in form, but they share a common function: expanding the state’s power to surveil, detain and “treat” marginalized people deemed disruptive or deviant. Far from offering real support, they reflect a deep investment in carceral control – particularly over disabled, unhoused, racialized and LGBTQIA+ communities. Communities that have often seen how the framing of institutionalization as “treatment” obscures both its violent history and its ongoing legacy. In doing so, these policies erase community-based solutions, undermine autonomy, and reinforce the very systems of confinement they claim to move beyond.Take Hochul’s proposal, which seeks to lower the threshold for involuntary psychiatric hospitalization in New York. Under her plan, individuals could be detained not because they pose an imminent danger, but because they are deemed unable to meet their basic needs due to a perceived “mental illness”. This vague and subjective standard opens the door to sweeping state control over unhoused people, disabled peopleand others struggling to survive amid systemic neglect. Hochul also proposes expanding the authority to initiate forced treatment to a broader range of professionals – including psychiatric nurse practitioners – and would require practitioners to factor in a person’s history, in effect pathologizing prior distress as grounds for future detention.This is not a fringe proposal. It builds on a growing wave of reinstitutionalization efforts nationwide. In 2022, New York City’s mayor, Eric Adams, directed police and EMTs to forcibly hospitalize people deemed “mentally ill”, even without signs of imminent danger. In California, Governor Gavin Newsom’s Care courts compel people into court-ordered “treatment”.Now, these efforts are being turbocharged at the federal level. RFK Jr’s Maha initiative proposes labor-based “wellness farms” as a response to homelessness and addiction – an idea that eerily echoes the institutional farms of the 20th century, where disabled people and people of color were confined, surveilled and exploited under the guise of rehabilitation.Just recently, the US Department of Health and Human Services (HHS) announced a sweeping restructuring that will dismantle critical agencies and consolidate power under a new “Administration for a Healthy America” (AHA). Aligned with RFK Jr’s Maha initiative and Donald Trump’s “department of government efficiency” directive, the plan merges the Substance Abuse and Mental Health Services Administration (SAMHSA), the Health Resources and Services Administration (HRSA) and other agencies into a centralized structure ostensibly focused on combating chronic illness. But through this restructuring – and the mass firing of HHS employees – the federal government is gutting the specialized infrastructure that supports mental health, disability services and low-income communities.The restructuring is already under way: 20,000 jobs have been eliminated, regional offices slashed, and the Administration for Community Living (ACL) dissolved its vital programs for older adults and disabled people scattered across other agencies with little clarity or accountability. This is not administrative streamlining; it is a calculated dismantling of protections and supports, cloaked in the rhetoric of efficiency and reform. SAMHSA – a pillar of the country’s behavioral health system, responsible for coordinating addiction services, crisis response and community mental health care – is being gutted, threatening programs such as the 988 crisis line and opioid treatment access. These moves reflect not just austerity, but a broader governmental strategy of manufactured confusion. By dissolving the very institutions tasked with upholding the rights and needs of disabled and low-income people, the federal government is laying the groundwork for a more expansive – and less accountable – system of carceral “care”.This new era of psychiatric control is being marketed as a moral imperative. Supporters insist there is a humanitarian duty to intervene – to “help” people who are suffering. But coercion is not care. Decades of research show that involuntary (forced) psychiatric interventions often lead to trauma, mistrust, and poorer health outcomes. Forced hospitalization has been linked to increased suicide risk and long-term disengagement from mental health care. Most critically, it diverts attention from the actual drivers of distress: poverty, housing instability, criminalization, systemic racism and a broken healthcare system.The claim that we simply need more psychiatric beds is a distraction. What we need is a complete paradigm shift – away from coercion and toward collective care. Proven alternatives already exist: housing-first initiatives, non-police and peer-led crisis response teams, harm reduction programs, and voluntary, community-based mental health services. These models prioritize dignity, autonomy and support over surveillance, control and confinement.As Liat Ben-Moshe argues, prisons did not simply replace asylums; rather, the two systems coexist and evolve, working in tandem to surveil, contain and control marginalized populations. Today, reinstitutionalization is returning under a more therapeutic facade: “wellness farms”, court diversion programs, expanded involuntary commitment. The language has changed, but the logic remains the same.This moment demands resistance. We must reject the idea that locking people up is a form of care. These proposals must be named for what they are: state-sanctioned strategies of containment, rooted in ableism, racism and the fear of nonconformity.Real public health does not rely on force. It does not require confining people or pathologizing poverty. It means meeting people’s needs – through housing, community care, healthcare and support systems that are voluntary, accessible and liberatory.As budget negotiations in New York continue to drag on – with expansions to involuntary commitment still on the table – and as RFK Jr advances carceral care proposals at the federal level, we face a critical choice: will we continue the long history of institutional violence, or will we build something better – something rooted in justice, autonomy and collective wellbeing?The future of mental health care – and of human dignity itself – depends on our answer.

    Jordyn Jensen is the executive director of the Center for Racial and Disability Justice at Northwestern Pritzker School of Law More

  • in

    How ‘revenge of the Covid contrarians’ unleashed by RFK Jr puts broader vaccine advances at risk

    The US health secretary, Robert F Kennedy Jr, entered office with a pledge to tackle the US’s chronic disease epidemic and give infectious disease a “break”. In at least one of those goals, Kennedy has been expeditious.Experts said as Kennedy makes major cuts in public health in his first weeks in office, the infrastructure built to mitigate Covid-19 has become a clear target – an aim that has the dual effect of weakening immunization efforts as the US endures the largest measles outbreak since 2000.“If his goal is to undermine public health infrastructure, he’s making strides there,” said Dorit Reiss, a University of California Law School professor whose research focuses on vaccine law. “If his goal is combating chronic diseases – he’s not doing very well.”The Department of Health and Human Services (HHS) has been characterized by upheaval since Kennedy and the billionaire Elon Musk’s unofficial “department of government efficiency” (Doge) cumulatively axed 20,000 jobs – roughly a quarter of the 82,000-person workforce.And it appears that turmoil will continue: a leaked budget memo shows the administration poised to propose a budget cut of another $40bn, or roughly one-third of the department’s discretionary spending.Amid the cuts, attacks on Covid-19 infrastructure have proven thematic, and show the administration’s hostility toward work that once mitigated the virus. That’s included attacking promising vaccine platforms and elevating once-ostracized voices to high-level roles.“The Covid-19 pandemic is over, and HHS will no longer waste billions of taxpayer dollars responding to a non-existent pandemic that Americans moved on from years ago,” a spokesperson for HHS told the Guardian in response to questions about its strategy.“HHS is prioritizing funding projects that will deliver on President Trump’s mandate to address our chronic disease epidemic and Make America Healthy Again.”Gregg Gonsalves, a Yale University associate professor and infectious disease epidemiologist, calls this strategy the “revenge of the Covid contrarians”.“They’re not interested in the science, they’re interested in their conclusions and having the science bend to their will,” said Gonsalves. “They want to create a Potemkin village of their own making that looks like science but has nothing to do with science at all.”Among Kennedy’s changes: attacks on the promising platform that supported Covid-19 vaccine development, delayed approval of a Covid-19 vaccine, the clawing back of grants that provided local immunization support and studied vaccine safety, and elevating one-time critics of Covid-19 policy.“When the new administration came in, we were hearing even within the organization: ‘We can’t say Covid, we’re not allowed to say Covid,’” said Lori Tremmel Freeman, chief executive officer of the National Association of County and City Health Officials (Naccho), about her members’ conversations.Freeman noted that “we kind of saw the writing on the wall a couple months ago that: ‘OK, they really don’t want anything Covid-related to be pursued any more.’ Everything Covid-related is quite honestly at risk.”In the latest change, Kennedy said this week he may remove Covid-19 shots from the childhood vaccine schedule, which would probably make the shots harder to get by limiting insurance coverage.“The recommendation for children was always dubious,” Kennedy told Fox News. Although a minority of children are vaccinated, the shots are recommended, especially for immune-compromised children.Freeman believes the desire to erase the government’s Covid legacy led to HHS’s decision to claw back $11bn in public health funds from states and localities. In effect done overnight, the clawback gave local officials only hours to lay off workers, cancel immunization clinics and even stop construction projects.“That’s why we feel like the drawback of the funding occurred: Covid,” said Freeman.A spokesperson for HHS characterized this as a savings, and said most canceled awards were for Covid-19-related work.The pullback led to the cancellation of more than 50 measles immunization clinics in Texas, where the measles outbreak has already claimed the lives of two unvaccinated children, to pilot programs such as “Text4Vax”, which sent reminders about pediatric vaccines to parents.Among the canceled grants were also programs that would seem to align with Kennedy’s rhetoric about vaccine safety – among them, a study of the safety and effectiveness of Covid-19 vaccines in pregnant women in California and global Covid-19 vaccine safety monitoring in New Zealand.“If you start to take away people from health departments – the immunizers, the educators, the clinicians – through some of these other funding cuts , it disables the program naturally,” said Freeman. “You can’t put as many shots in arms.”Larger cancelled grants included a $2.25bn grant program to reduce Covid-19’s impact on the people worst affected, which had been sent to states and localities from South Dakota to Florida and the Virgin Islands to Vermont.Under Kennedy’s watch, HHS has also taken the unusual step of delaying an expected vaccine approval, reportedly under the watch of a Kennedy political appointee.The Food and Drug Administration (FDA), which sits under the umbrella of HHS, delayed the expected 1 April approval of the Novavax Covid-19 vaccine. Novavax confirmed to the Guardian that its application remained on hold, and said it would have “no further comments”.Reiss said she doesn’t think “any vaccine that’s in the pipeline is going to go forward under Kennedy” or that “he will let any vaccine go far now”.Dr Tracy Hoeg, a political appointee, was reportedly involved in the decision. Hoeg also appeared as the FDA’s representative at a special advisory committee on immunizations in April, where she took the opportunity to question the efficacy of Moderna’s Covid-19 vaccine.An HHS spokesperson told the Guardian: “The FDA’s independent review process for the Novavax vaccine, like all vaccines, is based solely on ensuring safety and efficacy, not political considerations. Any delays are a result of scientific review, not a lack of priority. It’s important to focus on the facts rather than unfounded speculation.”Scientists have also said they fear for the future of messenger RNA (mRNA) vaccine technology – the platform that underpinned the fast development of Covid-19 vaccines and that held promise for treating and preventing a wide range of diseases.Hoeg served on Florida’s public health integrity committee, which served as a platform for Covid-19 criticism during the pandemic. At the time, it was chaired by the Florida surgeon general, Dr Joseph Ladapo, who has also sown doubt about the safety and efficacy of mRNA vaccines.Hoeg could be further buttressed by insiders such as Dr Matthew Memoli, who, Kennedy said, “is going to be running Niaid [National Institute of Allergy and Infectious Diseases]”. Memoli, whom Kennedy described as “the top flu researcher at NIH”, is known for opposition to Covid-19 vaccine mandates and declined to be vaccinated. In March, Memoli sent an email to NIH grant officials requiring any grant applications that reference mRNA technology to be reported to Kennedy’s office. He also canceled government-backed studies on vaccine hesitancy.The nominee for HHS general counsel, Michael B Stuart, is also well-known for involvement in vaccine fights. Stuart, a former West Virginia lawmaker, in 2023 proposed a bill to exempt virtual public school students from vaccine requirements and allow private schools to set their own requirements, according to Stat.“Dismantling the sort of vaccine infrastructure this country relies upon – that’s been in place for several dozens and dozens of years – only impacts the chronic disease front he’s trying to ameliorate as well,” said James Hodge, a professor of law at Arizona State University and a health law expert who said he worries about the future of vaccine advisory committees. “Acquiring infectious diseases leads to chronic conditions later.”Still, some of Kennedy’s most ardent supporters and reported informal advisers, such as the former cardiologist Peter McCullough, have argued these actions don’t go far enough.“The big threat is that we still have Covid-19 vaccines on the market,” McCullough told KFF Health News. “It’s horrendous. I would not hesitate – I would just pull it. What’s he waiting for?” McCullough did not respond to requests for comment from the Guardian. More

  • in

    Why does RFK Jr want to put my family on an ‘autism registry’? | Deborah Bloom

    I always knew my parents operated on a different wavelength than most.For one, they are both exceptionally smart. My mother is a former mathematician, who studied the various levels of infinity as part of her master’s thesis. My father is a computer programmer who, at 17 years old, was one of the youngest people to ever be able to communicate with ships in morse code. They met at a party for members of Mensa, a club for the highly intelligent.But their gifts have come with challenges. My dad struggles with eye contact and can become easily overwhelmed in social settings, where emotion and nuance can short-circuit his systems. My mother has difficulty with executive function, and finds it tough to stay neat and organized. Regulating their emotions and reading social cues don’t come easily to either of them.My father was first diagnosed with what was then known as Asperger’s syndrome in his 20s. My mother has never been officially diagnosed as autistic, but identifies as such. When I was a child desperately wanting to fit in with others, I found their neurodivergence to be embarrassing. I wanted what I thought other kids had: parents who got them to school on time, who didn’t have unpredictable, emotional flare-ups or constantly messy homes.Now as an adult, living in a time when neurodivergence is more openly discussed and understood, I’ve come to see their quirks not as flaws but as unique features of who they are. I’ll call my mom when I’m struggling across a tricky math problem, knowing she’ll light up with excitement at the opportunity to assist me with her expertise. I love watching my dad pour himself into his ham radio community, where friendships are forged without the pressure of eye contact.That’s why, when I first heard RFK Jr vow to the Trump administration to find the cause behind the so-called “autism epidemic”, describing it as a “cataclysm”, I got scared. Was the person in charge of the federal government’s healthcare apparatus really describing my parents as victims of an illness that we, as a society, have let get out of control?Later that week, he doubled down, calling autism spectrum disorder a “preventable disease” that “tears families part”, citing the growing rates of ASD among children: one in 31 kids in 2022, compared with one in 36 kids in 2020. “These are kids who will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.”Autism is, in fact, being diagnosed more than ever before, but scientists largely attribute this to increased awareness and a broader diagnostic criteria for the disorder. “When I started in this field in the late 60s, autism was a last resort diagnosis,” says Dr Catherine Lord, a clinical psychologist whose primary focus is ASD. “It was primarily given to kids with intellectual disabilities.”It’s also true that people in my generation have more autism diagnoses than our parents. But there are plenty of us out there who suspect our parents may have been on the spectrum, even though they were never formally evaluated. “It’s rare for a parent first to be diagnosed with autism, and then a child realizes they are also autistic,” Lord says. “It’s much more common for a parent to realize they’re on the spectrum after their kid’s been diagnosed.”RFK Jr’s blanket description of 2% of the population fails to take into account the wide spectrum of symptoms that people with autism experience. Some have higher needs than others. Many are able to mask their symptoms. Some are non-verbal – about 30%, according to the National Institutes of Health. All deserve to live in a society where they are understood, recognized and supported – not categorized, as RFK Jr describes, as a “tragic” aberration that needs to be snuffed out.The federal government says it is committing resources to finding the cause behind ASD (a condition that has been studied since the 1940s and is overwhelmingly attributed by scientists to genetics) and that it is starting an autism database to track the private medical information of numerous Americans. At the same time, it is also poised to cut funding for autism research and support.Slashes to the Department of Education and National Science Foundation mean less money for special needs kids and intervention programs. Reduced funding to the Substance Abuse and Mental Health Services Administration means autistic people, who are particularly vulnerable to mental illness, will have less access to mental health services. Meanwhile, there are concerns that Congress will cut Medicaid coverage, which would lead to less behavioral support for autistic people, especially children and low-income families. “It just seems so contradictory,” Lord says.By saying autism is a “preventable disease” rather than a complex neurodevelopmental disorder, RFK Jr further stigmatizes an already vulnerable population and threatens to set back a decades-long effort to bring ASD into public awareness and acceptance. Schools already struggle with how to incorporate autistic children into everyday learning, and few programs exist (let alone are publicly funded) specifically for neurodivergent kids. An infinitesimal percentage of workplaces recognize the unique needs of their neurodivergent employees, making it difficult for people with ASD to find and keep employment.Neither set of my grandparents understood their children were autistic, and so the support my parents received was limited. My mom’s parents shrugged their shoulders and categorized her as weirdly obstinate. My dad’s parents treated him like a prodigy, which, although a kinder approach, fostered a superiority complex and a host of anti-social behaviors, making it tough for him to find friends. As adults, both my parents struggled to hold down full-time employment at office jobs, presumably in part because their workplaces probably adhered to a rigid social compact and failed to recognize their unique needs.These days, my parents have learned to mask their autism to varying degrees. My father eventually taught himself how to sustain eye contact with others, and can now hold a conversation with minimal downward glances. They both, to a degree, have become more socially aware and work for themselves.So, no, autism did not ruin my family, as RFK Jr claims. If anything, their conditions have made me a more empathetic, understanding adult, which I believe makes me a better journalist, friend and daughter. But, I sometimes wonder: what would my parents’ lives have been like if society had made more room for them and others like them? I suspect that in a less ableist world, they would have led happier childhoods. And, I think, so too would I.

    Deborah Bloom is a text and video journalist who covers breaking news and human interest stories about gender, culture, mental health and the environment More

  • in

    RFK Jr calls sugar ‘poison’ but says government probably can’t eliminate it

    The US health secretary Robert F Kennedy Jr on Tuesday called sugar “poison” and recommended that Americans eat “zero” added sugar in their food, while acknowledging that the federal government was unlikely to be able to eliminate it from products.Kennedy, however, said that better labeling was needed for foods and that new government guidelines on nutrition would recommend people avoid sugar completely.The health and human services secretary also announced plans to eliminate the last eight government-approved synthetic food dyes from the US food supply within two years.Kennedy said at a press conference on Tuesday: “Sugar is poison and Americans need to know that it is poisoning us.”He added moments later: “I don’t think that we’re going to be able to eliminate sugar, but I think what we need to do, probably, is give Americans knowledge about how much sugar is in their products, and also, with the new nutrition guidelines, we’ll give them a very clear idea about how much sugar they should be using, which is zero.”The secretary said the public is under-informed about food.“Americans don’t know what they’re eating. We’re going to start informing Americans about what they’re eating,” he said.Meanwhile, he did not talk about vaccines or vaccinations at the press conference, but it was reported by Politico, citing sources familiar with departmental discussions, that Kennedy, a vaccine skeptic, was considering removing the Covid-19 shot from the official federal list of recommended inoculations for children.The outlet quoted an HHS spokesperson as saying a final decision on whether to continue recommending coronavirus vaccines for children had not been made.In the food discussions at the press conference, Kennedy talked about various dyes. Health advocates have called for the removal of artificial and petroleum-based dyes from foods, with some studies suggesting a link to neurobehavioral problems, including hyperactivity and attention issues, in some children, although a conclusive link is still contested.The Biden administration previously moved to ban Red No 3 food dye, citing cancer risks in animal studies. The Food and Drug Administration (FDA) has consistently maintained that the approved dyes are safe.Following Biden’s directive, Red No 3 must be removed from foods by 2027 and from medications by 2028. Kennedy aims to remove the remaining petroleum-based dyes, health officials said.“American children have increasingly been living in a toxic soup of synthetic chemicals,” the FDA commissioner, Marty Makary, said. “These steps that we are taking means that the FDA is effectively removing all petroleum based food dyes from the US food supply.”The move could mark a major step in Kennedy’s broader campaign against potentially harmful food additives. But some are still questioning how successful this campaign will be, especially regarding the Trump administration’s anti-regulatory stance towards industry giants.skip past newsletter promotionafter newsletter promotionWhen asked whether a formal agreement with food industry heads had been made, Kennedy responded: “I would say we don’t have an agreement. We have an understanding.”An enforcement strategy or a clear timeline for the upcoming ban remains unclear, though Makary said that the administration aims to eliminate the dyes “by the end of next year”.Kennedy questioned during the conference how the US would maintain world leadership “with such a sick population”, going on to refer to “all these autoimmune diseases” and “these exotic diseases”. He also expressed concern that the majority of American children cannot qualify for military service with certain conditions.He went on to speak about the apparent rise in several types of diseases and disorders, which he believes could be possibly linked to the use of food dyes or other additives. “I never knew anybody with a peanut allergy,” he said, referring to when he was a child. “I never knew anybody with a food allergy. Why do five of my seven kids have allergies?”The FDA has approved 36 food dyes for use in the US, nine of which are artificial and made from petroleum. The others are derived from natural sources, such as vegetables. More

  • in

    RFK Jr’s autism study collecting Americans’ private medical records

    The National Institutes of Health (NIH) is collecting the private medical records of many Americans from several different federal and commercial databases to give to researchers for US health secretary Robert F Kennedy Jr’s new autism study.With this information being included in the database, the NIH is also reportedly crafting a new registry to track those with autism, per CBS News.The health agency claims it was doing so to fulfill a controversial promise the secretary of health made to root out the cause of autism by September, despite some experts saying that Kennedy’s goal is not even feasible.“If you just ask me, as a scientist, is it possible to get the answer that quickly? I don’t see any possible way,” Dr Peter Marks said on CBS’s Face the Nation earlier this month.On the collection of data, the director of NIH, Jay Bhattacharya, told advisers during a presentation on Monday that the aim was to help researchers study autism by giving them access to “comprehensive” patient data and health records.He added that these records would cover a “broad range” of people across the US.“The idea of the platform is that the existing data resources are often fragmented and difficult to obtain. The NIH itself will often pay multiple times for the same data resource,” he said in the presentation. “Even data resources that are within the federal government are difficult to obtain.”Bhattacharya added that the NIH was also discussing a potential expansion of the agency’s access to data from the Centers for Medicare and Medicaid Services.The study also plans to link medication records from pharmacies, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers.Between 10 and 20 outside research teams will be selected and given grants to study the data, according to CBS News.Bhattacharya said that compiling this data could also potentially give health agencies a window into “real-time health monitoring” on Americans for studying other health problems beyond autism.“What we’re proposing is a transformative real-world data initiative, which aims to provide a robust and secure computational data platform for chronic disease and autism research,” he said.Bhattacharya echoed Kennedy’s words that some answers as to the cause of autism would be discovered by September, but he added that the study would be “an evolving process”.The news followed Kennedy’s first press conference in which he claimed that a significant and recent rise in autism diagnoses was evidence of an “epidemic” caused by an “environmental toxin” despite the evidence collected by health researchers.The Guardian has contacted the NIH for comment. More

  • in

    Pro baseball player Tarik El-Abour is everything RFK Jr says he can’t be

    When Tarik El-Abour was in middle school, his teacher asked him and his classmates a simple question. What do you want to be when you grow up? When it was time for him to answer, El-Abour gave a reply that thousands of children have said before. He wanted to be a baseball player. But his teacher shot back with something less than encouraging: “You’d better have a Plan B.” El-Abour, who was diagnosed with autism at the age of three, remained undeterred. Rather than listening to his pessimistic instructor, he distanced himself from her.He thought that if he continued to talk to her, she might convince him he was unable to achieve his goal. In the end, he was right, and the teacher was wrong. El-Abour grew up to become a baseball player after receiving a degree in business administration from Bristol University in California. He first played professionally in the Empire League, where he was named rookie of the year in 2016 and was an All-Star in 2017. Then, in 2018, he signed a deal with the Kansas City Royals, a franchise just three years removed from winning the World Series. He played outfield in the minor leagues during the 2018 season, flourishing under the mentorship of JD Nichols of World Wide Baseball Prospects and Reggie Sanders of the Royals, becoming the first recorded autistic player in MLB history.All of this will be news to the US health and human services secretary, Robert F Kennedy Jr, who said earlier this month that: “Autism destroys families, and more importantly, it destroys our greatest resource, which is our children … These are kids who will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.”El-Abour chooses to let Kennedy’s comments slide off him.“When it comes to politics,” the 32-year-old tells the Guardian, “I’m so used to crazy stuff being said by people. I’m just in a spot where it doesn’t really get to me. I get that’s just how some things are. The way I look at it, the only things I care about are the things I have control over – like baseball and those I care about most.”El-Abour, who is now playing in the Zone 22 scouting league in Los Angeles and hoping for another shot at the majors, says he doesn’t know what it’s like not to be autistic. But he explains that the way his brain works helps him focus and embrace repetition – both valuable qualities for a ballplayer. “Baseball requires a lot of repetition to be good at it,” he says. “And people with autism tend to be repetitive. I guess that’s maybe where it benefits me.”Kennedy, a fan of doing his own research, may want to note that El-Abour is not the only autistic professional athlete in the US. Tony Snell, who also has two autistic sons, was diagnosed with autism. And he had a nine-year NBA career, playing on several teams, including the Chicago Bulls and New Orleans Pelicans. “Learning I have [autism] helped me understand my whole life,” said Snell in a recent interview. “This is why I am the way I am.” Joe Barksdale, who revealed in 2022 that he was diagnosed with autism, played eight years in the NFL. And Nascar driver Armani Williams also stated publicly he is autistic. Of course, there are more autistic athletes coming up in the ranks, too.“It was a surprise when the [Kennedy] news came out last week,” El-Abour’s mother, Nadia, tells the Guardian. “I wanted to post something then Tarik said, ‘No, the [media] will take care of it.’ Tarik started laughing. He goes, ‘Oh, wow, why did he [Kennedy] choose baseball?’”She says that, unlike some politicians today, her son is very logical. Many autistic people, she explains, don’t attach emotion to the truth. Something simply either is true or it isn’t. “They can’t understand why we don’t accept the truth,” Nadia says. It’s the same reasoning El-Abour employed when flouting his middle school teacher’s “Plan B” idea. In fact, he bristled at it so much that he didn’t even want to be around the energy of the school building, often crossing the street rather than walk near it.“He doesn’t see obstacles,” Nadia says of her son. “He doesn’t think of ‘I can’t.’ He just thinks, ‘How … how can I do that?’”El-Abour, who was non-verbal until he was about six years old, started playing baseball later in life, around 10 years old. At first, he was unsure if he liked the game, which his father signed him up for. But when he got into the batter’s box, something happened. He even gave up his spot as pitcher on the team because he was told pitchers don’t bat in the pros. From then on, he arranged his whole life around things that would make him be a better player. He painted an X on the garage to practice his throwing accuracy. He took fly balls into the night with his coaches. Rather than, as Kennedy would have us believe, baseball was something unattainable for El-Abour, it helped him blossom.Indeed, El-Abour’s life is a far cry from the picture Kennedy Jr and others have tried to paint. But despite any number of ignorant comments, El-Abour says he’s grateful for who he is and proud of what he’s achieved so far in his life. He says “it’s an honor” that people ask him about his autism and he’s glad he can add to the conversation. “It’s very humbling,” El-Abour says, “to be possibly making an impact. Baseball really gave me something that I enjoy and love doing. It always gives me something to be motivated for and to be better at each day throughout my life. And that’s really good.” More

  • in

    RFK’s statements prove autistic people and their families everywhere should fear Trump and his allies | John Harris

    In the recent past, Robert F Kennedy Jr has said that Donald Trump is “a terrible human being” and “probably a sociopath”. But in the US’s new age of irrationalism and chaos, these two men are now of one voice, pursuing a strand of Trumpist politics that sometimes feels strangely overlooked. With Trump once again in the White House and Kennedy ensconced as his health and human services secretary, what they are jointly leading is becoming clearer by the day: a war on science and knowledge that aims to replace them with the modern superstitions of conspiracy theory.Nearly 2,000 members of the US’s National Academies of Sciences, Engineering, and Medicine have warned of “slashing funding for scientific agencies, terminating grants to scientists, defunding their laboratories, and hampering international scientific collaboration”. Even work on cancer is now under threat. But if you want to really understand the Trump regime’s monstrousness, consider where Kennedy and a gang of acolytes are heading on an issue that goes to the heart of millions of lives: autism.Last Wednesday, Kennedy spoke at a press conference staged in response to a report about apparently rising rates of autism published by the US’s Centers for Disease Control and Prevention. And out it all came: an insistence that autism is an “epidemic” and a “preventable disease”, and – in complete defiance of the science – that the root cause lies with “environmental toxins”. A range of new studies, he said, will begin reporting back in September: with the same banality that defines his boss’s promises on international conflict and global economics, he told his audience that answers would be presented to the public “very, very quickly”.Most of the people present would have been aware of Kennedy’s past support for the thoroughly discredited idea that autism is somehow linked to the use of vaccines. As he spoke, they were presumably reminded of the occasions when he has talked about autistic people with a mixture of disgust and complete ignorance. Autism, he said, “destroys” families; today’s autistic children “will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted.” Those comments have rightly triggered a huge backlash. But what has been rather lacking is a broader critique of Kennedy’s ideas, and how they go deep into aspects of the US’s culture and politics.As I explain in the book I have just written about my autistic son, James, I began my immersion in autism and the arguments that swirl around it 15 years ago, when he received his diagnosis from the NHS. That came amid visits from speech therapists and educational psychologists, and increasingly futile appointments with a paediatrician, who in effect told us to go away and manage as best we could. But straight away, I was also aware of a much more exotic subculture rooted in the US, based around the idea that autism could somehow be cured, and an array of regimens and pseudo-treatments.The anxieties surrounding Andrew Wakefield’s disgraced work on a link between autism and the measles, mumps and rubella (MMR) jab were still easy to pick up. I read about “chelation”: injecting chemicals into the bloodstream, supposedly to remove the toxic preservatives used in vaccines from the body and send autism on its way. It was easy to find stuff about impossibly restrictive diets, and the terrifying notion of forcing people to drink diluted bleach. These ideas, moreover, came with claims of endless government cover-ups: proto-Maga stuff, which had long been snowballing online.That said, the underlying logic of all this quackery was encouraged by much more mainstream voices. By and large, British campaigning and research tends to focus on what autism actually is, and how to make autistic lives better – whereas in the US, very powerful forces have seen autism as a disease. In 2006, President George W Bush signed a legislative package tellingly called the Combating Autism Act, hailed by one of its supporters as “a federal declaration of war on the epidemic of autism”. At that point, there were initiatives and organisations with names such as Cure Autism Now and Defeat Autism Now! All this had already spawned the autistic self-advocacy movement that continues to loudly contest such ideas, but its appeal obviously still lingers.If I were in the US, I would now have two big worries. As well as constant attacks on the public sector that have already hacked back help for autistic people, there is a huge question about what Kennedy’s nonsense might mean for other areas of federal government policy, and the kind of MMR-style panics his “answers” on toxins might trigger. But some of those concerns also apply to the UK, thanks to the ease with which ideas travel, and how Trump and his allies influence politics across the world.Kennedy’s pronouncements are not only about what causes autism; they also reflect an age-old perception of autism as an aberration, and many autistic people as “ineducable” and beyond help. This surely blurs into populists’ loathing of modern ideas about human difference: once you have declared war on diversity, an attack on the idea of neurodiversity will not be far away. It also chimes with one of the new right’s most pernicious elements: its constant insistence that everything is actually much simpler than it looks.Which brings me to something it feels painful to have to write. Autism denotes a fantastically complicated set of human traits and qualities, but that does not make them any less real. It presents with and without learning disabilities, and can be synonymous with skills and talents. Its causes (if that is even the right word) are largely genetic, although careful research is focused on how those heritable aspects might sometimes – sometimes– intersect with factors during pregnancy, and with parental age. And obviously, those characterisations barely scratch the surface, which is some indication of the absurdity of Kennedy’s position, and how dangerous it is.On this side of the Atlantic, there are very good reasons why many of us who have families with autistic members feel deep anxiety about the constant shunting of politics to the right. The care, education and official understanding of the people we love and sometimes look after is fragile enough already: what would happen if their fate was in the hands of the Trumpist know-nothings of Reform UK, or Alternative für Deutschland? The American tragedy unfolding in front of our eyes shows the future we now have to avoid, and the kind of people we may have to fight, who will not just be arrogant and inhumane, but set on taking us back to a failed past: terrible human beings, you might call them. More

  • in

    Trump news at a glance: US senator blocked on El Salvador visit; Fed warns on tariffs

    A Democratic senator who says El Salvador’s government refused to allow him to visit his constituent wrongly deported to the country has condemned an “unjust situation”. Chris Van Hollen said its vice-president told him it would not be possible for him to speak with Kilmar Ábrego García in person or on the phoneThe senator’s visit came as Democrats have seized on the deportation and the Trump administration’s refusal to take any steps to return him, in apparent defiance of the supreme court, to argue that the president is plunging the US into a constitutional crisis.A federal judge, meanwhile, threatened contempt proceedings against Trump officials for violating his injunction over the deportation of alleged Venezuelan gang members. The judge also warned that he could name an independent prosecutor if the White House stonewalled contempt proceedings.And the Federal Reserve chair warned that Donald Trump’s tariffs were likely to worsen inflation, while US stocks slid further and the value of Nvidia dropped by billions after the president imposed new restrictions on the chip giant.Here are the key stories at a glance:El Salvador denies senator’s request to meet Ábrego GarcíaMaryland Democratic senator Chris Van Hollen says the government of El Salvador has turned down his request to visit Kilmar Ábrego García, his constituent who was wrongly deported to the Central American country last month.Read the full storyJudge finds probable cause to hold Trump officials in contemptA federal judge ruled on Wednesday there was probable cause to hold Trump officials in criminal contempt for violating his temporary injunction that barred the use of the Alien Enemies Act wartime power to deport alleged Venezuelan gang members.Read the full storyFed chair says Trump tariffs could make inflation worseJerome Powell, the US Federal Reserve chair, warned that Trump’s tariffs were generating a “challenging scenario” for the central bank and were likely to worsen inflation. His comments on Wednesday came as US stock markets had already been rattled by a new trade restriction on the chip designer Nvidia.Read the full storyMore universities back Harvard as Trump doubles downNumerous Democratic politicians and top universities across the country have rallied in support of Harvard, but the Trump administration has doubled down, threatening to strip Harvard of its tax-exempt status and insisting that the university apologize.Read the full storyUK labels trade documents ‘secret’ to shield from US eyesUK officials are tightening security when handling sensitive trade documents to prevent them from falling into US hands amid Trump’s tariff war, the Guardian can reveal. In an indication of the strains on the “special relationship”, British civil servants have changed document-handling guidance, adding higher classifications to some trade negotiation documents in order to better shield them from American eyes, sources said.Read the full storyRFK Jr contradicts experts on autismThe US health secretary, Robert F Kennedy Jr, said in his first press conference that the significant and recent rise in autism diagnoses was evidence of an “epidemic” caused by an “environmental toxin”, which would be rooted out by September. However, autism advocates and health experts have repeatedly stated the rise in diagnoses is related to better recognition of the condition, changing diagnostic criteria and better access to screening.Read the full storyDoge tried to embed staffers in criminal justice non-profit, says groupStaff at Elon Musk’s so-called department of government efficiency (Doge) demanded to meet with an independent non-profit to discuss embedding a team within their organization, according to the non-profit, stating that refusal to take the meeting would mean a violation of Trump’s executive order empowering Doge.Read the full storyCalifornia launches legal challenge against Trump’s ‘illegal’ tariffsCalifornia is preparing to ask a court to block Trump’s “illegal” tariffs, accusing the president of overstepping his authority and causing “immediate and irreparable harm” to the world’s fifth-largest economy. The lawsuit, which was to be filed in federal court on Wednesday by California’s governor, Gavin Newsom, and attorney general, Rob Bonta, is the most significant challenge yet to Trump’s flurry of on-again-off-again tariffs.Read the full storyWhat else happened today:

    The Trump administration is shuttering the state department’s last remaining bastion to monitor foreign disinformation campaigns.

    The Trump administration sued Maine for allowing transgender girls to compete in school sports.

    Seth Rogen’s pointed criticism of Trump’s policies on science was edited out of the filmed coverage of an annual science awards show, it has emerged.
    Catching up? Here’s what happened on 16 April 2025. More