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Living and Struggling With Long Covid

More from our inbox:

  • Being Jewish in America
  • Black Voters, Beware the G.O.P.
  • Liz Cheney’s Book: ‘Too Little, Too Late’
  • Students Know We Need Free Speech
Holly Stapleton

To the Editor:

Re “What Reporting on Long Covid Taught Me,” by Ed Yong (Opinion guest essay, Dec. 22):

As a Covid long-hauler (going on three years now!), I found it validating and even supportive to read Mr. Yong’s essay. It was particularly validating to have the acknowledgment of post-exertional malaise (PEM). This so aptly describes much of my life.

For example, I apologize to my dog before going on a shorter-than-usual walk. I have to plan for seemingly mundane tasks of self-care and home care: taking a shower, changing clothes, doing the dishes, sweeping my apartment, doing laundry, etc. I put these tasks in my calendar, and even then the expectation of the aftermath makes me feel incapable, desperate and overwhelmed.

I appreciated Mr. Yong’s astute acknowledgment that symptoms are often dismissed because of sexism (I’m transgender). And I was denied disability because it was determined that I was functional enough to wrap silverware in napkins. Yes indeed, treatment is not only a medical issue, but also a social one.

Mr. Yong made it clear that his journalism has been transformed by doing research in a more integrative manner, especially actually being with current long-haulers. I’m immensely grateful to him for his journalism and to The Times for publishing it.

(I earned my Ph.D. in 2012, and it’s taken me two days to write this.)

River Jackson-Paton
Dallas

To the Editor:

Ed Yong’s guest essay is right on point. Long Covid is real, and the public needs to be educated about it.

My experience with Covid is that of a former registered nurse in the thick of it. I watched so many patients and co-workers get sick, some dying, some getting better, and some who are still struggling with long Covid.

It is very hard for me to hear someone, usually an anti-vaxxer, say, “They should just let everyone get Covid and get it over with.”

I hear this quite often and my response is always, “Are you familiar with long Covid?” I always get one of two responses: “No” or “That’s made up.” Then I try to educate.

Donna Hunt
Atascadero, Calif.

To the Editor:

I appreciate Ed Yong’s extraordinary reporting on long Covid and his opinion piece about the health care system’s failure to take chronic illness patients seriously. What many do not realize is that years and even decades before the pandemic caused long Covid, many patients, including me, struggled to find doctors and treatments for many of the same health problems that long Covid patients face.

I cannot give you a single name for our illness because it does not yet exist. I and countless other patients have a slew of diagnoses, including autoimmune diseases, mast cell disorders, connective tissue disorders and dysautonomia. Many of us are disabled and homebound or bedbound.

Doctors for these disorders were already hard to find, and the surge of long Covid patients has made accessing knowledgeable care more difficult. I hope the increased demand will inspire more doctors to study and treat these conditions. Now that even more patients are suffering, we need to stop dismissing this constellation of illnesses.

Rachel Graves
Tacoma, Wash.

Photographs of some of the hostages captured by Hamas on display by the Western Wall in Jerusalem.Ohad Zwigenberg/Associated Press

To the Editor:

Re “Why I Can’t Stop Writing About Oct. 7,” by Bret Stephens (column, Dec. 20):

American democracy has promised a land, as Mr. Stephens says, “in which you didn’t have to hide.” Mr. Stephens writes despairingly about the loss of this promise, and there’s no doubt that, today, America’s promise feels remote to many. For Jews, an eroding democracy brings with it a profound sense of trauma and fear.

Yet the most appropriate Jewish response to this challenge is not despair, but determination. If our institutions are buckling, let’s reinforce them with forums for civic learning. If our civic culture is fraying, let’s repair it with opportunities for dynamic and respectful conversation. If our democracy is under threat, let’s take actions that strengthen it — right now, and in communities across the country.

For nearly two and a half centuries, even amid painful setbacks, the United States has offered one of the last, best places to be Jewish — not because it catered to Jews, but because its democratic pluralism, albeit aspirational and imperfect from the beginning, allowed minorities like ours an opportunity to live freely.

When that democratic pluralism struggles, we shouldn’t prematurely mourn its loss. We should repair it instead. This is not naïveté; it’s the agency our parents and grandparents came here looking for.

Aaron Dorfman
New York
The writer is the executive director of A More Perfect Union: The Jewish Partnership for Democracy, a network of synagogues and Jewish groups.

Kshaun Williams says he has seen his life become harder because of rising inflation under President Biden.José Ibarra Rizo for The New York Times

To the Editor:

Re “Black Voters in Georgia Say Biden Has Forgotten Them,” by Mara Gay (Opinion, Dec. 24):

Ms. Gay cautions that Black voters in Georgia feel ignored and abandoned and may desert the Democratic Party in the coming presidential election. While her conclusions are highly debatable, there is no such doubt regarding the alternative.

The Republican Party of Donald Trump has rolled back voting rights, gerrymandered predominantly Black districts, eliminated or scaled back social programs that aid the poor and sent federal troops to crack down on anti-racism protests.

Should Georgia’s Black voters leave the Democrats for the Republicans, they will quickly learn the real meaning of abandonment.

Tom Goodman
Philadelphia

Jonathan Ernst/Reuters

To the Editor:

It’s with some relief that I read Carlos Lozada’s Dec. 21 column, “Liz Cheney’s Checkered History of the Trump Era.”

Ms. Cheney worries about the prospect of another Donald Trump tenure in the White House, but I worry just as much about Ms. Cheney’s rush to sainthood as she plugs her new book and her ostensibly revised views.

As Mr. Lozada reminds us, Ms. Cheney, right along with other Trump molls and henchmen in the G.O.P., long pledged obeisance to Mr. Trump. She — no less than the people she now criticizes — got us to this awful, scary time and place, and she shouldn’t get a pass now for what is at best a clear case of “too little, too late.”

Beth Z. Palubinsky
Philadelphia

Tim Enthoven

To the Editor:

Re “Students Can Show Us the Way to Free Speech,” by Sophia Rosenfeld (Opinion guest essay, Dec. 18):

Ms. Rosenfeld’s essay thoughtfully reminds us that we, as the parenting, teaching and older generations, don’t always have better answers to questions about free speech than our children and students. Indeed, as Ms. Rosenfeld writes, “The sky really isn’t falling.” Our youth are more capable of finding reasonable solutions than we think.

I recently attended my son’s college graduation. For weeks before going, I loathed what I thought would surely be a depressing carnival of elite righteousness. Instead, I experienced something far more reassuring about our future.

I conversed with my son’s classmates to hear their views about free speech, wokeness and education. Not surprisingly, they are intelligent, insightful, compassionate, but most of all, keenly aware of what is broken. They are respectful and friendly to each other, even when they disagree.

Now is the time for the preachy older generations to step aside and trust the younger generations. They can and are navigating the treacherous waters of our time just fine.

Nao Matsukata
Bethesda, Md.


Source: Elections - nytimes.com


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