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    Why is the Trump administration obsessed with autism? – podcast

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    Archive: Good Morning America, NPR, NBC News, WHAS11, BBC News, CBS News, Jimmy Kimmel Live, LiveNowFox
    Listen to Science Weekly’s episode factchecking Trump’s claims about paracetamol
    Buy Carter Sherman’s book, The Second Coming: Sex and the Next Generation’s Fight Over its Future, here
    Buy Jonathan Freedland’s new book, The Traitor’s Circle, here
    Buy John Harris’ book, Maybe I’m Amazed, about connecting with his son James, diagnosed with autism as a child, through music
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      Trump says Ukraine could regain all territory lost to Russia since 2022 invasion after meeting Zelenskyy at UN – live

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      In a post on Truth Social, Donald Trump said that Ukraine is in a position to “fight and win back” all of the territory it has lost since the beginning of the 2022 Russian invasion.“Why not? Russia has been fighting aimlessly for three and a half years a War that should have taken a Real Military Power less than a week to win,” Trump wrote, in a rare full-throated endorsement of Ukraine’s potential.“Ukraine would be able to take back their Country in its original form and, who knows, maybe even go further than that! Putin and Russia are in BIG Economic trouble, and this is the time for Ukraine to act,” Trump said in his lengthy social media meditation. He added that the US will continue to supply Nato with weapons for purchase.Earlier, in a bilateral meeting with Volodymyr Zelenskyy, Trump said that the “Russian economy is terrible right now” and Ukraine has done a “pretty amazing” job at staving off the Kremlin’s forces.Donald Trump’s meeting with Arab and Muslim leaders at the United Nations has concluded. The president did not answer any questions, but White House pool reporters noted that he said he had a “very good meeting” and teased his intention to follow up with a meeting with Israel.The Associated Press also noted that special envoy Steve Witkoff offered a thumbs-up in response to a question about how the meeting went.China’s representative to the Security Council criticized the use of sanctions, a strategy that the Trump administration has shown renewed interest in at this meeting of the UN General Assembly.“Abusing unilateral sanctions and long-arm jurisdiction under the pretext of the crisis does not contribute to a political settlement,” the representative said.The United States has previously levied sanctions against China, and Chinese companies, for supporting Russia.Secretary of state Marco Rubio touted Donald Trump’s role in negotiations to end the war in Ukraine during a meeting of the UN Security Council, while also noting that the president was open to levying “additional economic costs” on Russia and selling additional defensive weaponry and “potentially offensive weaponry” to Ukraine.“The president is a very patient man,” Rubio said, “but his patience is not infinite.”“The United States remains as committed as it has ever been to a peaceful resolution to this dangeorous conflict, but there will come a moment where we will have to conclude that perhaps there is no interest in a peaceful resolution,” he added.Defense secretary Pete Hegseth has decided to close a Defense Department advisory committee dedicated to recruiting and retaining women in the military.In a social media post announcing the closure of the Defense Advisory Committee on Women in the Services, Pentagon spokesperson Kingsley Wilson wrote: “The Committee is focused on advancing a divisive feminist agenda that hurts combat readiness, while Secretary Hegseth has focused on advancing uniform, sex-neutral standards across the Department.”The advisory committee was founded in 1951 under Harry Truman’s presidency. The Military Times reported earlier this year that the committee was one of 14 defense advisory committees flagged for potential termination, though many of those would require congressional approval to be disbanded.Here’s more from my colleague Rachel Leingang:Speaking to the UN General Assembly today, South African president Cyril Ramaphosa said that “trade is now being used as a weapon against a number of countries in the world.”The comment may have been a reference to Donald Trump’s tariffs – which include a 30% levy against South Africa. In May, Ramaphosa met Trump in the Oval Office, where the president played Ramaphosa a video that he falsely claimed proved genocide was being committed against white people under “the opposite of apartheid”.Here’s more on the state of the US-South Africa relationship from my colleague David Smith:Senate minority leader Chuck Schumer criticized Donald Trump for canceling a meeting with top Congressional Democrats, scheduled for Thursday, ahead of an approaching government funding deadline at the end of the month.At a press conference, Schumer said Trump should “stop ranting” and that “time is of the essence” as the 30 September deadline approaches.“Mr. President, do your job,” Schumer said.Ukrainian president Volodymyr Zelenskyy is also speaking currently at a UN meeting of the Security Council. “One of the prominent members of this council is doing everything to prolong the largest war in Europe since World War II,” Zelenskyy said. “Russia does this with its veto power.”“China is also represented here, a powerful nation on which Russia relies completely,” he added. “Without China, Putin’s Russia is nothing.”Zelenskyy also nodded to his recent meeting with Donald Trump. “We expect America’s actions to push Moscow toward peace,” he said.Donald Trump’s multilateral meeting with several leaders of Arab and Muslim countries has begun.In brief remarks to reporters, Trump said, “We want to end the war in Gaza.”“This is my most important meeting,” he added. “We’re going to end something that should have probably never started.”During his pull aside with Macron, Donald Trump flagged that his next meeting – a multilateral sitdown with several leaders of Arab and Muslim countries – will be crucial to address the ongoing crisis in Gaza.“We’re going to see if we can do something about it. We want to stop that. We want to get our hostages back, or their hostages back.”Much like his address to the general assembly today, the president said that we can’t “forget” the October 7 attack by Hamas in his meeting with Macron. In response, the French president said “nobody forgets the seventh of October”.This week, France joined Britain, Canada, Portugal and Australia to formally recognize Palestinian statehood. For his part, Donald Trump has branded the move as a “reward to Hamas”.In a meeting with French president Emanuel Macron, Donald Trump reiterated his recent comments on Truth Social that Ukraine has the potential to win back all the territory it has lost to Russia in the three and a half years since the most recent war in the region began.Trump said that Ukraine’s ability to fight back might prove that Russia is a “paper tiger”.“I feel that way. I really do feel that way. Let them get their land back,” the president added.In a post on Truth Social, Donald Trump said that Ukraine is in a position to “fight and win back” all of the territory it has lost since the beginning of the 2022 Russian invasion.“Why not? Russia has been fighting aimlessly for three and a half years a War that should have taken a Real Military Power less than a week to win,” Trump wrote, in a rare full-throated endorsement of Ukraine’s potential.“Ukraine would be able to take back their Country in its original form and, who knows, maybe even go further than that! Putin and Russia are in BIG Economic trouble, and this is the time for Ukraine to act,” Trump said in his lengthy social media meditation. He added that the US will continue to supply Nato with weapons for purchase.Earlier, in a bilateral meeting with Volodymyr Zelenskyy, Trump said that the “Russian economy is terrible right now” and Ukraine has done a “pretty amazing” job at staving off the Kremlin’s forces.Earlier, president of the EU commission Ursula von der Leyen said that Donald Trump was “absolutely right” about European countries continuing to buy Russian energy products. A move the president described as “inexcusable” in his address to the UN general assembly today.“We’re on it. We have reduced already massive gas supply from Russia, completely gotten out of Russian coal, and massively also reduced the oil supply. But there’s still some coming to the European continent,” von der Leyen said during a pull aside meeting with the presiden. “So what we do now? We put sanctions out to those ports where, for example, energy is coming from Russia. And we want to put tariffs on oil supplies that are still coming to the European Union.”Ryan Routh, the man who attempted to assassinate Donald Trump at the president’s Florida golf course last year, has been found guilty in federal court today.Routh, 59, was convicted on five counts, including attempting to assassinate a major presidential candidate and possessing a firearm as a convicted felon. In September 2024, he was spotted with a rifle hiding in the bushes at the president’s West Palm Beach club as Trump’s golfing party approached. Routh represented himself in court, and prosecutors accused him of plotting for months to kill Donald Trump during his successful run to return to the White House.“Today’s guilty verdict against would-be Trump assassin Ryan Routh illustrates the Department of Justice’s commitment to punishing those who engage in political violence,” said attorney general Pam Bondi.Jurors deliberated for just a few hours before returning with a guilty verdict. According to reports from the courtroom, as the verdict was being read, Routh attempted to stab himself in the neck with a pen.Fox News reports that four marshals then dragged Routh out of the court room, shackled him, and brought him back. More

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      Trump’s absurd Tylenol claims heighten the suffering of pregnant women in the US | Moira Donegan

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      Robert F Kennedy Jr continued his futile search for a single pharmaceutical cause of autism on Monday, when the Trump administration claimed that distorted recent studies and misstated scientific evidence to allege a link between women’s Tylenol use during pregnancy and the development of autism in children. Kennedy has long spoken with disturbing disgust about autistic people, claiming at one press conference that autistic children “destroy families” and “will never pay taxes. They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date.” He had previously pledged to find the cause of autism by this month.As part of his apparent quest to eliminate this vast and varied group of people – who do, in fact, pay taxes, hold jobs, play baseball, write poems, go on dates, and function as beloved and caring members of functional families – Kennedy has already sought to restrict access to common vaccines. In June, he fired every member of the advisory committee on immunization practices, an influential group of vaccine experts whose recommendations had long shaped policy for the Centers for Disease Control and Prevention. In place of the experts, he reconstituted the panel with a number of vaccine critics and cranks, whose incompetence has led to chaotic meetings and bizarrely changing vaccine recommendations. Donald Trump has recently joined his health secretary in casting aspersions on childhood vaccines – safe and effective treatments that have saved countless lives and are among the more wonderful miracles of human innovation. “It’s too much liquid,” the president said of the early childhood immunizations on Monday. “Too many different things are going into that baby at too big a number. The size of this thing, when you look at it.”Trump’s remarks came at what was supposed to be the debut for Kennedy’s new tactic: discouraging pregnant women from taking a common over-the-counter medication to ease pain or reduce fevers. At a rambling and shambolic press conference issued from the White House, Trump was unambivalent in his unproven assertions of the drug’s dangers. “Taking Tylenol is, uh, not good,” Trump said, flanked by Kennedy and Dr Mehmet Oz. “I’ll say it. It’s not good.” The president also offered his opinion that the weight-loss drug Ozempic doesn’t work, offering that his friends who take the drug are still fat. Kennedy, his face an uncanny color, stood awkwardly behind Trump, wearing a suit jacket that was visibly too small and with his head hanging slightly to the side; he looked a bit like a bored child at a prep school assembly. “Don’t. Take. Tylenol,” Trump continued, addressing pregnant women. “And don’t give it to the baby after the baby is born.”There is no evidence suggesting that Tylenol causes autism. A small number of studies have shown a correlation – not a cause – between acetaminophen use and incidents of neurological development disorders in early childhood. But these studies, aside from being inconclusive in their results, are also flawed in their methodologies: because pregnant women cannot be easily or ethically sorted into control groups, it is impossible for researchers to isolate Tylenol as a causal factor in the ensuing health of their children. There is as much evidence to suggest that those women whose children later developed autism got it from the Tylenol they took as there is to suggest that they got it because of a gust of wind, or because their mothers wore the color green. Fevers, however – which Tylenol is used to treat – pose proven risks to a fetus, and have been linked to cleft lip and palate, spina bifida, and congenital heart defects. “The conditions that people use acetaminophen to treat during pregnancy are far more dangerous than any theoretical risks and can create severe morbidity and mortality for the pregnant person and the fetus,” Dr Steven Fleischman, the president of the American College of Obstetricians and Gynecologists, said in a statement.Pregnant women do not lack for judgmental, frightening and dubiously factual instructions about their health. Everywhere, they are told that they risk the health of their fetus by partaking in a series of banal everyday activities – be it jogging or having coffee or eating a certain cheese – that they are told will lead, by obscure mechanisms that are never quite explained, to impossible and devastating health outcomes for their children-to-be. The admonishments are multiple and often contradictory, but they all tend to agree on one thing: that it is always good for women to deprive themselves of joy and relief – and to suffer more – for the sake of their fetuses.Health misinformation has thrived on the ignorance in which most women are kept about their bodies, particularly during pregnancy, and it feeds on the cruel combination of neglect and lack of interest with which many women have been treated by the medical system and the maximally judgmental and punitive treatment that they receive from others while pregnant. Frightened women, scared both for the health of their pregnancies and for the ways they will be blamed if something goes awry, seek out a way to secure a good outcome, and are met by charlatans, grifters and quacks who are happy to tell them lies in exchange for their attention and money. It is this very dynamic, fed like a sourdough starter in the damp and fecund social media environment of the pandemic, that Kennedy used to revive his own career after decades of scandal and disgrace.Now, this cynical exploitation of pregnant women’s fears, deployed to them at a time when they are most vulnerable, is coming from no less a place of authority than the White House itself.At the press conference, Trump advised pregnant women to simply endure their suffering. “A mother will have to tough it out,” he told them. Readers will forgive me if I posit that perhaps pregnant women in the US are already suffering enough. Six justices of the supreme court, three of them appointed by Trump himself, ruled in 2022 that they no longer have the federally protected right to terminate their pregnancies. The laws that have gone into effect since have cost several pregnant women their lives, as laws prohibit the medical interventions that could easily save them and allow them to die painful, premature and needless deaths. Other women have had their corpses desecrated for the sake of Trump’s anti-choice agenda, as hospitals and lawmakers use them as incubators against their will. Others are being forced to wait for care while they bleed and develop sepsis, risking their organs and their lives. The Trump administration has cut off Medicaid funding to some of the largest providers of sexual and reproductive healthcare, meaning many of the clinics that pregnant women rely on will now have to close. With doctors who provide gynecological and obstetric care fleeing states with strict abortion bans, many pregnant women in the US do not have access to competent medical care at all. As a result, more babies are being born sick, and more of them are dying. Women from states such as Florida report being forced to carry fetuses that have no chance of surviving, and then being forced to watch those infants suffer and die in the moments after birth. As Kennedy continues with his search for the causes of autism, his eugenic project will inevitably extract more and more coercion and violence on the bodies of pregnant women. Today’s fearmongering about Tylenol is only the beginning.It can seem darkly comedic at times how laughably incompetent Trump and his administration are. Kennedy’s ill-fitting suit; the president’s ramblings about his fat friends; the brazen indifference to truth in the absurd claim that Tylenol, perhaps the paradigmatic over-the-counter drug, is somehow this lurking danger. Trump’s idiocy and vulgarity give the lie to the pomp and dignity of his office; his now near-total capture of American political life mocks the promise of democracy. But pregnant women are not a punchline. Their hopes for their families, their fears for their bodies, their health, their comfort and their dignity – all of these are things Trump is willing to sacrifice at the altar of his own ego. Tylenol isn’t dangerous, but he is.

      Moira Donegan is a Guardian US columnist More

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      in US Politics

      Trump claims with little evidence that use of Tylenol, or acetaminophen, in pregnancy is linked to autism – US politics live

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      “Effective immediately the FDA will be notifying doctors that the use of acetaminophen,” Trump struggled to pronounce the drug name, “or Tylenol, can be associated with a very increased risk of autism,” Trump said.“So taking Tylenol is not good.”“For this reason, they are strongly recommending that women limit Tylenol use during pregnancy unless medically necessary,” he added.Donald Trump has responded to the American College of Obstetricians and Gynecologists statement on Tylenol announcement, following a reporter’s question.“That’s the establishment. They’re funded by lots of different groups. And you know what, maybe they’re right,” he said. “But here’s the thing, there’s no downside to doing this.”Trump has returned to the podium, sharing a range of stories and his opinions on vaccines and medications.“Don’t take Tylenol,” he said emphatically. “There’s no downside.”According to the Society for Maternal-Fetal Medicine untreated fever during pregnancy does carry significant risks to moms and babies, such as miscarriage and birth defects.The manufacturer of Tylenol, Kenvue Inc, has released a statement in response to the president’s announcement, saying it “strongly disagrees” with the suggestion that the medication may cause autism.“Sound science clearly shows that taking acetaminophen does not cause autism,” the statement says.The American College of Obstetricians and Gynecologists, the nation’s leading organization for obstetricians and gynecologists, says Donald Trump’s announcement regarding Tylenol use in pregnancy is “irresponsible when considering the harmful and confusing message they send to pregnant patients.”“Today’s announcement by HHS is not backed by the full body of scientific evidence and dangerously simplifies the many and complex causes of neurologic challenges in children,” the organization’s president, Dr. Steven Fleischman, said in a statement.“It is highly unsettling that our federal health agencies are willing to make an announcement that will affect the health and well-being of millions of people without the backing of reliable data.”Ahead of the president’s announcement, the Society for Maternal-Fetal Medicine said Tylenol is “an appropriate medication to treat pain and fever during pregnancy.” It added that untreated fever during pregnancy carries significant risks to moms and babies, such as miscarriage and birth defects.The two mothers speaking at Donald Trump’s press conference have shared the experiences of their two children, both of whom have autism, and expressed gratitude to the Trump administration for prioritizing research into autism.Dorothy Fink, who served as acting health secretary pending Robert F Kennedy Jr’s confirmation and is now currently the acting assistant secretary for health, has introduced two mothers, introduced only as Jackie and Amanda.Mehmet Oz, administrator for the Centers for Medicare & Medicaid Services, says more than half of children in the United States, who are insured under Medicaid and the Children’s Health Insurance Program (Chip), will be able to access leucovorin due to the FDA’s label change. He said he hopes private insurers will follow suit.He said the agency will also collect data on the effectiveness of leucovorin.Makary has also announced the FDA’s decision to make leucovorin available as a treatment for autism.“Hundreds of thousands of kids will benefit,” he said.“Today the FDA is taking action to update the label on acetaminophen,” says FDA commissioner Marty Makary. He added his agency is sending a letter to all physicians explaining the update.Makary has also cited medical research on the link between Tylenol and autism.Here’s a helpful guide to that research from my colleagues:The National Institutes of Health has launched an Autism Data Science Initiative, says agency director Jay Bhattacharya.The initiative directs $50m to the study of autism, and will fund 13 research projects.“The NIH has invested a lot of money to study autism over the years, but the research has not produced the answers that families and parents of autistic children, and autistic children themselves deserve,” he said. “For too long it’s been taboo to ask some questions for fear the scientific work might reveal a politically incorrect answer.”Kennedy says that the FDA has announced a new treatment for autism: leucovorin, a form of folic acid.The FDA published a notice in the Federal Register announcing the treatment, it cited “patient-level data on over 40 patients, including both adults and pediatric patients” to support the finding that the drug can improve symptoms from cerebral folate deficiency, which it says has been reported in some patients.Health and Human Services will announce a nationwide public service campaign to spread knowledge about the agency’s Tylenol announcement, Kennedy said.Robert F Kennedy Jr is speaking now at the president’s White House press conference. He’s begun by describing changes at US health agencies.”We are now replacing the institutional culture of politicized science and corruption with evidence-based medicine,” Kennedy said. “NIH research teams are now testing multiple hypotheses with no area off limits.”Trump has also announced that the National Institutes of Health will be announcing 13 major grant awards from the autism data science initiatives.“Nothing bad can happen, only good can happen,” he said. More

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      in US Politics

      Trump officials unveil highly contentious conclusions on autism

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      The Trump administration unveiled highly contentious conclusions about the causes of autism, together with a push for research purporting to find a possible “cure” for the condition on Monday.After months of widely trumpeted investigations spearheaded by the health secretary, Robert F Kennedy Jr, Donald Trump announced that pregnant women should limit their use of acetaminophen, usually branded as Tylenol in the US, which he claimed heightens the risk of autism when it used by pregnant women, an assertion hotly contested by scientists internationally and contradicted by studies.Speaking from the White House, flanked by Kennedy, the president said he had “waited for 20 years for this meeting … and added: “It’s not that everything’s 100% understood or known, but I think we’ve made a lot of strides.”But he declared: “Taking Tylenol is not good … All pregnant women should talk to their doctors about limiting the use of this medication while pregnant.”Kennedy followed, announcing that the health department and US Food and Drug Administration would work to change the label on acetaminophen risks.He also spoke about upcoming recommendations that the hepatitis B shot, currently given to newborns as part of the national vaccine standards, should be given in a delayed manner or in smaller doses, despite limited evidence of the impacts.The announcements were made by Trump amid a blaze of fanfare at the White House, in a ceremony attended by other senior administration figures.Trump, who has frequently voiced his concern over autism and said, along with Kennedy, that the US is suffering from an “epidemic”, flagged up a major initiative on Sunday at Charlie Kirk’s memorial in Arizona.“Tomorrow we’re going to have one of the biggest announcement[s] … medically, I think, in the history of our country,” he said. “I think you’re going to find it to be amazing. I think we found an answer to autism.”One in 31 children aged eight had a diagnosis of autism spectrum disorder (ASD) – a condition denoting communication and social difficulties, along with repetitive behaviors – in the US in 2022, according to the US Centers for Disease Control and Prevention (CDC). That compares to about one in 150 in 2000.Kennedy, who previously peddled the theory that the condition is caused by vaccinations, has attributed the rise to “environmental toxins”.However, specialists say the increase is mainly due to increased screening, combined with evolving definitions of the disorder. They have also said the causes are predominantly dictated by genetics.Scientists in the US and UK reacted to the Tylenol link sceptically, with British physicians denouncing it as “fearmongering” that risked stigmatising parents of children with autism.Speaking on a call organized by Defend America Action, a campaign group, Debra Houry, a former chief medical officer and deputy director at the CDC, told journalists: “As of three weeks ago, we hadn’t seen evidence that acetaminophen was linked with autism, so it’s curious to know how quickly that was developed.”“There are many studies which refute a link, but the most important was a Swedish study of 2.4m births published in 2024 which used actual sibling data and found no relationship between exposure to paracetamol [known in the US as acetaminophen] in utero and subsequent autism, ADHD or intellectual disability,” said Dr Monique Botha, associate professor in social and developmental psychology at Durham University“The fearmongering will prevent women from accessing the appropriate care during pregnancy.US medical practitioners also cast doubt on the putative link with acetaminophen.Dan Jernigan, another former CDC career scientist and former director of the national center for emerging and zoonotic infectious diseases, criticised Kennedy’s efforts to study autism.“We were all asked to be a part of autism studies and to put together [an autism plan],” he said. We helped develop some of that. But then over time, what we saw was [Kennedy] having an increasingly top down approach, essentially ‘my way or the highway,’ with no regard again for the scientific processes.”Some researchers have also pleaded caution on hopes for leucovorin, which has been reportedly shown in some tests to trigger marked improvements in the speaking and understanding ability of some people with autism.Irva Hertz-Picciotto, an epidemiologist and autism specialist at the University of California, Davis, told the Washington Post that unrealistic expectations could lead to a loss of trust.“I worry that it feels like everything is now tainted that comes out of the current administration,” she said.Bruce Mirken, communications co-chair of Defend Public Health, poured cold water on the announcements in advance. “While we don’t know what he will claim today, we do know that Kennedy has a history of false statements related to autism and that the scientific evidence shows there is no ‘autism epidemic’,” he said.Additional reporting by Melody Schreiber and agencies More

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      in US Politics

      Trump officials reportedly set to tie Tylenol to autism risk

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      Donald Trump’s administration is expected to tie pregnant women’s use of the popular medicine known as Tylenol to a risk for autism, contrary to medical guidelines, the Washington Post has reported.Trump officials on Monday are also expected to announce an effort to explore how the drug leucovorin could purportedly and potentially treat autism, according to the Post report published Sunday, which cited four sources with knowledge of the plans who spoke on the condition of anonymity because the announcement had not been made.Medical guidelines say it is safe for pregnant women to take Tylenol, the over-the-counter pain medication whose active ingredient is acetaminophen.Yet earlier in September, the Wall Street Journal reported that Trump’s health secretary Robert F Kennedy Jr planned to announce that use of Tylenol by pregnant women was potentially linked to autism spectrum disorder, which is defined as a neurodevelopmental condition marked by social as well as communication difficulties and behaviors that are repetitive.Meanwhile, as the Post reported, some medical trials involving administering leucovorin to children with autism have shown “what some scientists describe as remarkable improvements in their ability to speak and understand others” – though those trials are considered early.The Post’s report came a day after Trump publicly said “we’re going to have an announcement on autism on Monday”.Without offering specifics, the president added: “I think it’s gonna be a very important announcement. I think its gonna be one of the most important things that we will do.“Reuters contributed reporting More

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      Illinois governor is first in US to block federal access to personal data on autism

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      Illinois governor, JB Pritzker, has signed a first-in-the-nation executive order to block the federal government from collecting personal health data related to autism, a direct rebuke to the Trump administration.Pritzker, a Democrat who has been one of the more vocal critics of Donald Trump’s second administration, signed the order last week, saying he wanted to protect “dignity, privacy, and the freedom to live without fear of surveillance or discrimination”.It came two days after the US Health and Human Services secretary, Robert F Kennedy Jr, announced a plan to use data maintained by the National Institutes of Health, and claims submitted for Medicare and Medicaid coverage, to determine the causes of autism. While the agency did not release details of the plan, Kennedy promised it would follow “applicable privacy laws to protect Americans’ sensitive health information”.Prior to his rise to health secretary, Kennedy joined anti-vaccine advocates in claiming childhood vaccines are responsible for autism, but studies by the US Centers for Disease Control and Prevention and others have ruled that out.Pritzker’s executive order bans state agencies from disclosing “personally identifiable autism-related data” outside of state government unless the person or their guardian gives consent, it’s required by legal action, it’s necessary to provide services such as employment or housing or is otherwise required by law. State contractors, vendors and grant recipients are also covered.“We are taking steps to ensure that our state remains a leader in protecting the rights of individuals with autism and all people with disabilities,” Pritzker said.Andy Shih, chief science officer for Autism Speaks, a national advocacy group funding research and services, said he’s unaware of a similar declaration elsewhere. And while Kennedy promises to abide by privacy guidelines, Shih said with advances in computational power and algorithmic thinking, what’s private data today might not be tomorrow.Government investigators could use some techniques to get more information than what is previously disclosed. In the wrong hands, it could be used against patients to deny them constitutionally protected rights.“There’s always that concern,” Shih said. “Being proactive to protect privacy, which is something we value as a society, this should be applauded.”Kennedy has previously said he wants to be able to announce by September some of the causes of autism, a complex brain disorder better known as autism spectrum disorder because it affects people differently. For some people, profound autism means being nonverbal or having intellectual disabilities, while milder cases might mean difficulty with social and emotional skills.Experts say Kennedy’s planned database isn’t appropriate to uncover autism’s causes in part because there’s no information about genetics. However, Shih noted that the Department of Health and Human Services’s announcement was about creating a platform to help understand a range of chronic illnesses, which he said could be useful.Shih added that linking data sets is a proven way of studying issues of health. He pointed to a study published earlier this year in the Journal of the American Medical Association that found dementia in significantly higher numbers among autistic adults over age 65 than the general population. It was achieved by linking numerical identifiers from two different data sets. More

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      in Elections

      ‘A Veneer of Official Medical Knowledge’: Three Opinion Writers on Kennedy’s Tenure

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      Alexandra Sifferlin, a health and science editor for Times Opinion, hosted a written conversation with the Opinion columnist Ross Douthat and the Opinion writers Jessica Grose and David Wallace-Wells about Robert F. Kennedy Jr.’s first two months as secretary of health and human services.Alexandra Sifferlin: Robert F. Kennedy Jr. vowed to tackle chronic disease and take on the food and pharmaceutical industries. But his response to a measles outbreak in the Southwest — and inflammatory remarks about autism at a press briefing — have drawn criticism from all sides.Ross, you’ve written about your own experiences with chronic illness and the limitations of the U.S. medical system. What’s been your view of Kennedy’s Make America Healthy Again movement, and what do you make of his tenure as health leader so far?Ross Douthat: I think debates about the limitations of the U.S. medical system tend to be polarized in a very, shall we say, unhealthy way. On one side, you have people who haven’t hit the limits of medical consensus and knowledge in their own lives, and therefore struggle to understand why so many of their fellow citizens would want to wander outside those limits in search of answers or wisdom. On the other side, you have people with very good reasons for skepticism of conventional wisdom, but who have allowed that skepticism to become total, making them reject everything the establishment says while fastening onto a specific outsider narrative as an absolute alternative even if the evidence is lacking.On a lot of fronts, Kennedy and the MAHA movement exhibit the latter problem. There’s absolutely room for new research and new debate about the causes of chronic illness, or autism or obesity — all areas where the official understanding of things doesn’t have definite answers for a lot of people. And there’s always good reason for skepticism about the medical-industrial complex writ large. But Kennedy seems committed to his own set of low-evidence theories — the vaccine-autism link being the most prominent example — and he seems to be working backward from the outsider perspective, rather than trying to genuinely create dialogue between the establishment and its critics.David Wallace-Wells: I’m not sure it’s even just low-evidence theories. I worry about the quality of the evidence demonstrating the problem. One thing I’d really like to see an autism commission tackle is the seemingly simple question of to what degree we actually are really living through an epidemic. I think there are reasons to worry about an increase in cases, and about environmental factors contributing. But I also think the alarming charts you see showing exponential growth in prevalence are really not very credible, and yet they are what is powering our panic.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More