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    ‘There was no place for me in American society’: an ex-Black Panther cub speaks out

    Hello and welcome to The Long Wave. This week, Guardian Documentaries has released a short film about the life and legacy of the Black Panthers with a focus on the group’s children. It was released alongside a Long Read by Ed Pilkington in the US on the wider group. I spoke to one of those cubs in the film, Ericka Abram, about her childhood within the activist community in the 1970s, and how her life was shaped by the experience. But first, the weekly roundup.‘I lived in a protected Panther bubble’View image in fullscreenThe first thing I notice about Ericka is that she is deliberate in her articulation and her responses are meticulously considered. She is also warm and quick-witted, with a flair for a killer line. She will not argue with people online about Donald Trump, she says, because it’s a waste of time to engage with a “bot, a baby or a bigot”.Ericka is the daughter of Elaine Brown, a former chair of the Black Panther party, and Raymond Hewitt, one of its leaders. She spent her early years in Oakland, California, and the Black Panther party she grew up in was not only a political organisation, but also a social one. The cubs lived in dormitories and had their own school. At weekends, they could return to a home where adult members of the party lived together and played an equal role in their care – “comrade moms” is how she describes the women she lived with.Ericka had no idea her childhood was anything out of the ordinary. Even though reporters showed up at their schools, and she had seen her mother and Huey Newton, the co-founder of the Black Panthers, on television, she did not have a sense of how outsiders perceived the party. I ask her if she was aware of the risks involved for her family and the wider network. “It just felt like family,” she says. Despite this, she shares a chilling story about her mother’s bodyguard stopping a seven-year-old Ericka from opening the door of their house and rebuking her, because he was the first person who should walk out, in case someone shoots.The full picture did not start to become clear until she was in high school, years after her mother left the party and took Ericka with her. She recalls someone once telling her: “Your mother is the only woman in US history to lead a paramilitary organisation.” Ericka says it was “strange” to hear her mum being described like that.She recalls a community that was deeply activist but also, perhaps counterintuitively, apolitical. Ericka tells me it often shocks people that she not only had no insights on the internal politics of the Black Panthers, but she had almost no idea what the party actually was. “The Black Panther party and the reasons it existed were unknown to me. [This is] because I wasn’t suffering racism or sexism; I lived in a protected Panther bubble.” The group participated in boycotts with farmworkers, who successfully secured better working conditions and union rights, and Ericka “hated” that party members couldn’t eat grapes and things she thought were delicious. But the boycotts were explained to her in such a way that she grasped that there were overlords who needed to be forced to play fair. She says from an early age she understood capitalism as synonymous with greed.View image in fullscreenLeaving that bubble was a sharp adjustment. When Ericka was eight her mother left the party and moved to Los Angeles, and the experience of attending a non-Black Panther school for the first time was full of conflict. “I had fights frequently – arguments with my teachers – most of it was about injustice. One teacher put me out of class because I said Australia was founded by prisoners and bigots or something like that. I was in seventh grade.” Another time she was ejected from class for sitting quietly during the pledge of allegiance. “I might not have understood the values that were raising me, but as soon as I was removed from them I needed them most,” she says.I ask how she adjusted to living in the mainstream. Her answer is unequivocal: “There was no place for me in American society.” That might have led to her finding refuge in drugs, says Ericka, who started using cocaine when she was 15. “I was trying to medicate a pain I didn’t understand. And living a life I hadn’t any intention of living.” As a child, she had assumed she would one day become a Black Panther. When that life did not come to pass, a profound sense of effacement took hold. “I developed this idea that unless I die for the people, my life was worthless,” she says. Growing up in an organisation with such a clear purpose raised the hurdle so high that one may as well not try to scale it. That’s what comes “from being raised by people who knew what they were willing to die for”, she says.I suggest that she is describing a sort of nihilism and erasure. Well, yes, is her answer. Ericka has always believed that individuals do not matter. “We were raised to believe we were precious – but we were precious for a purpose. I went to school with a kid called Bullet. I mean, there’s no pressure there.” Ericka says at times she felt she did not live up to expectations. As a teenager “I felt I had failed my mother,” she admits casually. I stop her. Why? “Because when we left [the Black Panther party] there was nothing to protect us from America. I thought I could protect her but I didn’t understand what that meant.”skip past newsletter promotionafter newsletter promotionWith such a legacy, I wonder if she harbours any resentment towards her mother, or indeed that generation of Black Panther parents, for not preparing their children for life outside the party? “No,” she says, before I finish the question. “I didn’t feel resentment. But I remember I was about to start my sophomore year when Huey Newton was killed. I felt so alone. And I realised that I wasn’t mourning his death but that, even at the age of 19, some part of me thought that as long as he was alive, someone would still come and tell me what to do.” As she holds back tears, there is such plaintiveness and loss in her voice. For a moment, she is again that 19-year-old faced with figuring life out on her own.And it feels as if she has. Ericka’s sense of failure has been replaced by an understanding that what the Black Panthers signed up to was something exceptional. She refuses to call herself a cub, because a cub grows up to be a Panther. And she is not that. “They really did promise their lives to an ideal,” she says.The values she grew up with are serving her well during a tumultuous time in US political history. “I know that I see the world in a unique way,” Ericka says when I ask how the Black Panthers shaped her life. She understands now that the difference between “activists and revolutionaries is what you are willing to risk” – and that without solidarity, nothing can be achieved. The Black Panthers were not just seeking racial equality but interconnection between all who are suffering the depredations of state and capital. There is in Ericka a clear understanding that what it takes to stabilise politics in a country roiled by a second Trump administration is a combination of empathy but also resolve – action guided by love.The Black Panther Cubs: When the Revolution Doesn’t Come is out now. For more on this story read Ed Pilkington’s in-depth essay, here. And for an exclusive behind-the-scenes look at the Guardian’s latest films as they release, sign up here to the Guardian Documentaries newsletter.To receive the complete version of The Long Wave in your inbox every Wednesday, please subscribe here. More

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    How to Care for a Loved One With Dementia: 5 Expert Tips

    Gene Hackman was cared for by his wife in his final years. Her unexpected death highlights the essential and challenging job of those who care for Alzheimer’s patients.The details of Gene Hackman’s final days may never be known. But officials in Santa Fe, N.M., said on Friday that it appeared that Mr. Hackman, who had advanced Alzheimer’s as well as heart disease, had spent about a week alone after his wife, who was his caregiver, died at home of a rare viral infection.Mr. Hackman, 95, may have been among the most famous movie stars of the 20th century, but his circumstances point toward a common challenge, according to experts in dementia and family caregiving. Like Mr. Hackman, about seven million Americans have Alzheimer’s, a type of dementia, and their family members, like his wife, Betsy Arakawa, 65, often help care for them as the disease progresses.Laura N. Gitlin, a behavioral scientist at Drexel University who researches ways to support caregivers, said that when a patient is diagnosed with dementia, their loved ones rarely receive all the information they need.“No one really explains to the family what the course of the disease may look like, how to prepare,” she said. “No one checks in on the caregiver.”Knowing how to prepare for this situation can help improve the quality of life for not only patients, as they adjust to life with the disease, but also those who become devoted to their needs. Here are five tips to consider if you become a caregiver for a loved one with dementia.Stay social.People with dementia may feel uncomfortable or anxious around faces they don’t recognize, and stigma can lead some families to retreat from social life. But becoming reclusive can worsen the disease, said Dr. Helen Kales, a geriatric psychiatrist at the University of California, Davis. Isolation can accelerate cognitive decline and even puts caregivers at a higher risk for developing dementia themselves.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    Their Parents Are Giving Money to Scammers. They Can’t Stop Them.

    One son couldn’t prevent his father from giving about $1 million in savings to con artists, including one posing as a female wrestling star. The two became estranged.When Chris Mancinelli walked into his father’s home for the first time after the 79-year-old man died last summer, he stopped to look at family photos displayed on the refrigerator door. Near a crayon drawing spelling out “grandpa” in rainbow colors were photos of his father’s three granddaughters at a swimming pool.But one image jumped out: a photo of Alexa Bliss, a professional wrestling personality.Mr. Mancinelli’s father, Alfred, was completely smitten with the star — or at least with the con artist impersonating her. He was convinced he was in a romantic relationship with Ms. Bliss, leading him to give up about $1 million in retirement savings (and his granddaughter’s college fund) to the impostor and a varied cast of online fraudsters he interacted with over several years.When Mr. Mancinelli tried to intervene, moving his father’s last $100,000 to a safe account, Alfred sued him — his loyalty was to “Lexi.”“There was nothing we could do to convince him,” said Mr. Mancinelli, 47, a chemical engineer in Collegeville, Pa. An elder care specialist deemed Alfred “really sharp,” he said, but lacking purpose.Mr. Mancinelli and others who have tried to awaken their loved ones from this trance often feel powerless, even after they’ve done everything to shatter the fiction and protect their assets. They say it’s as if their parent had been brainwashed into a cult.In some ways, they were: These victims were slowly groomed by con artists posing as love interests, investment advisers or government officials, among others. Once ensconced inside this bubble, they are unable or unwilling to acknowledge that they have become victims. Even when their own children are warning them of the con.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    How Caregivers for Dementia Patients Manage Mood and Personality Changes

    Shifts in behavior can be challenging to manage. Experts have five strategies that can help.Susan Hirsch was visiting her father in the hospital where he was recuperating after a fall and was shocked to find him — long devoted to her mother — flirting with a nurse as if he were “17 and in the Navy again,” she said.Ms. Hirsch, a 67-year-old memory care educator from Palmyra, Pa., scolded her father. But the admonishment only enraged the 93-year-old man; she recalled him saying, “in not nice words,” to get out of his room as she scuttled away.More than 11 million adults in the United States are caring for people diagnosed with Alzheimer’s and other forms of dementia. In addition to memory loss, most people with dementia will experience mood and behavior changes including aggression, apathy, disorientation, depression, wandering, impulsivity and delusions.Many caregivers describe mood and personality changes as the most upsetting symptoms. While antipsychotic and sedative medications are often used to manage dementia-related mood issues, they have limited efficacy.To get on top of — and feel less toppled by — mood changes, it’s helpful for caregivers to remember that those shifts are caused by changes in the brain, said Dr. Nathaniel Chin, a geriatrician and associate professor in the department of medicine at the University of Wisconsin-Madison.“They’re no one’s fault,” he said, and recognizing this can help you “feel less upset at your loved one.”We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    Francisco Lopera, the ‘Country Doctor’ Who Upended Our Understanding of Dementia

    Francisco Lopera defied rebels, cartels and vampire bats to become a pioneering researcher of Alzheimer’s disease.In 1978, Dr. Francisco Lopera did what recent medical school graduates in Colombia and much of Latin America have long done: He set out for an obligatory year of work in a remote part of the country, where an inexperienced médico rural might be the only physician for miles. Dr. Lopera, who was born in the Andean region of Antioquia and knew mostly mountains and farm life before medical school, carried out his service in the Darién Gap, on the Caribbean coast near Panama.There Dr. Lopera, a groundbreaking Colombian Alzheimer’s researcher who died this week at age 73, treated stabbings, snakebites, complicated births, burns and fevers in a hospital that had electricity for only half the day. On one occasion, he was kidnapped by Marxist guerrillas. Another time, he had to flee gunshots.When I met Dr. Lopera in 2017, to start research on a book about the families with Alzheimer’s that became his life’s work, he told me a story about two young brothers who had died one after the other in his hospital, of unknown causes. Lopera traveled to the family home in a remote jungle clearing, where he discovered that the boys’ surviving siblings had bites on their fingers from vampire bats. He sent the bodies to a pathology lab hours away by boat, and the pathologists confirmed rabies. When the government brought in a rabies expert to investigate, Dr. Lopera joined him.He left that experience — long nights in the rainforest, searching for hidden roosts, engrossed in the natural history of rabies and bats — wanting to become a rabies epidemiologist. But that was not to be. His interests were eclectic and quick to change, and a few years later he became a neurology resident in Medellín.In 1984, Dr. Lopera examined a farmer in his 40s who appeared to have dementia. Dr. Lopera took again the unusual step of traveling to the family home, in a mountain hamlet like the one where he had been born. Not just the farmer had symptoms of dementia, he saw — a brother also appeared to be affected. Dr. Lopera had discovered what would turn out to be the world’s largest family with early-onset Alzheimer’s disease. The family shared a genetic mutation, later nicknamed the paisa mutation, that was unique to their region of Colombia. Dr. Lopera spent the next four decades studying the family’s 6,000 members.Dr. Francisco Lopera, second from right, in Yarumal, Colombia, in 2010, with Oderis Villegas, center, who was showing signs of Alzheimer’s disease at age 50. A sister, María Elsy, left, had a more advanced case.Todd Heisler/The New York TimesWe are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    Do You Have Healthy Brain Habits? Take This Quiz to Find Out.

    What can I do to take good care of my brain and lower my risk for a neurological disease? That’s the No. 1 question neurologist Dr. Jonathan Rosand hears from his patients (and their family members) at the Massachusetts General Hospital McCance Center for Brain Health. To help answer it, he and his colleagues, with […] More

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    5 Books to Make Caregiving a Little More Manageable

    Health care professionals and other experts shared recommendations for anyone providing and receiving care.Tina Sadarangani, a geriatric nurse practitioner in New York City, has spent years working with older adults and their families. She counsels patients on the medications they should take, the eating habits they should change and the specialists they should see.But it wasn’t until her own father became seriously ill — requiring a slew of medications, deliveries, physical therapy and more — that she understood the experience from what she calls “the other side of the table.”Dr. Sadarangani, who has a doctorate in nursing, comes from a family of medical providers. But most of the people who care for loved ones don’t have this expertise.“If it was this complicated for our family,” Dr. Sadarangani said, “how were people with no medical backgrounds doing this every day in America?”Resources like books aren’t a panacea, she said. But they can help validate experiences, offer advice and make us feel less alone. Here are five titles, recommended by health care providers and other experts, to help those who help others.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    A Blood Test Accurately Diagnosed Alzheimer’s 90% of the Time, Study Finds

    It was much more accurate than primary care doctors using cognitive tests and CT scans. The findings could speed the quest for an affordable and accessible way to diagnose patients with memory problems.Scientists have made another major stride toward the long-sought goal of diagnosing Alzheimer’s disease with a simple blood test. On Sunday, a team of researchers reported that a blood test was significantly more accurate than doctors’ interpretation of cognitive tests and CT scans in signaling the condition.The study, published Sunday in the journal JAMA, found that about 90 percent of the time the blood test correctly identified whether patients with memory problems had Alzheimer’s. Dementia specialists using standard methods that did not include expensive PET scans or invasive spinal taps were accurate 73 percent of the time, while primary care doctors using those methods got it right only 61 percent of the time.“Not too long ago measuring pathology in the brain of a living human was considered just impossible,” said Dr. Jason Karlawish, a co-director of the Penn Memory Center at the University of Pennsylvania who was not involved in the research. “This study adds to the revolution that has occurred in our ability to measure what’s going on in the brain of living humans.”The results, presented Sunday at the Alzheimer’s Association International Conference in Philadelphia, are the latest milestone in the search for affordable and accessible ways to diagnose Alzheimer’s, a disease that afflicts nearly seven million Americans and over 32 million people worldwide. Medical experts say the findings bring the field closer to a day when people might receive routine blood tests for cognitive impairment as part of primary care checkups, similar to the way they receive cholesterol tests.“Now, we screen people with mammograms and PSA or prostate exams and other things to look for very early signs of cancer,” said Dr. Adam Boxer, a neurologist at the University of California, San Francisco, who was not involved in the study. “And I think we’re going to be doing the same thing for Alzheimer’s disease and hopefully other forms of neurodegeneration.”In recent years, several blood tests have been developed for Alzheimer’s. They are currently used mostly to screen participants in clinical trials and by some specialists like Dr. Boxer to help pinpoint if a patient’s dementia is caused by Alzheimer’s or another condition.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More