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    Overlooked No More: Lorenza Böttner, Transgender Artist Who Found Beauty in Disability

    Böttner, whose specialty was self-portraiture, celebrated her armless body in paintings she created with her mouth and feet while dancing in public.This article is part of Overlooked, a series of obituaries about remarkable people whose deaths, beginning in 1851, went unreported in The Times.It was the weekend of the gay pride parade in New York City in 1984 when Denise Katz heard her doorbell ring. Surprised, she opened her door and was greeted by Lorenza Böttner, a transgender artist, who was wearing a wedding gown that she had customized to fit her armless body.“I’m here for the party!” Böttner said in her hybrid German-Chilean accent. Though Böttner had buzzed the wrong apartment, Katz invited her in anyway. “From that moment on, we didn’t part,” she said.That Katz worked in an art supply store and Böttner was a prolific artist was pure coincidence.Böttner in 1983. After she lost her arms in a childhood accident, her mother encouraged her to create art with her mouth and her feet.via Leslie-Lohman Museum of ArtThroughout her lifetime, Böttner created a multidisciplinary body of work with her feet and mouth that included painting, drawing, photography, dance and performance art. She made hundreds of paintings in Europe and America, dancing in public across large canvases while creating impressionistic brushstrokes with her footprints. In New York, she performed in front of St. Mark’s Church in-the-Bowery, and Katz, who would become her roommate, provided her with large pieces of paper and other supplies.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    How 2 Families Faced a Catastrophic Birth Defect

    Ashlee Wiseman, a waitress at a Sizzler in Idaho Falls, Idaho, was 10 weeks pregnant when a nurse phoned with crushing news: a test of fetal DNA in her blood had found that her baby girl had trisomy 18, a catastrophic genetic abnormality, and was unlikely to survive.Devastated, she called her partner, Clint Risenmay, who was at work. He broke down in tears.Ashlee’s response was different.“A still small voice took over me,” she said. “I’m like, ‘I’m not going to listen to them. There has to be something that can help her. And there has to be someone who can help.’”A social media search led her to Dr. John Carey, a professor emeritus of pediatrics at the University of Utah, who has devoted his life to helping families dealing with trisomy 18. He supports pregnant women who chose abortion, but also helps couples who want to have babies with this rare condition, though most will be stillborn or die within a year.Ashlee and Clint were undeterred. They could do it, they assured Dr. Carey. They would lovingly care for a baby with complex medical needs.The consequences of trisomy 18 are dire. The babies have three copies of chromosome 18 instead of two and, as a result, have serious medical and developmental problems. Nearly all are unable to eat, walk or talk, and all have severe cognitive disabilities. They often need open-heart surgery and feeding and breathing tubes. Many women, after hearing what is in store, choose abortion.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    6 Books for Adults Living With ADHD

    Psychiatrists, counselors and researchers shared their recommendations.Staying focused in a world of distractions can be incredibly challenging. But for people living with attention deficit hyperactivity disorder — a neurodevelopmental disorder often marked by difficulty maintaining attention, disorganization, hyperactivity and impulsivity — it can be even harder. Adults are diagnosed less often than children, but A.D.H.D. can still create problems at work and in friendships and romantic relationships.Books can be “the entree into understanding whether you should consider getting a diagnosis and evaluation for A.D.H.D.,” said Melissa Orlov, the founder of A.D.H.D. and Marriage, a website and consulting company that provides resources for couples living with the condition.Sharon Saline, author of “What Your A.D.H.D. Child Wishes You Knew: Working Together to Empower Kids for Success in School and Life,” says the right book can combat misinformation. It can also help people close to someone with A.D.H.D. by providing a “toolbox for engaging with them, supporting them and loving them,” she said.To demystify the subject, we asked experts — psychiatrists, counselors and researchers — to recommend books on A.D.H.D., focused on adults.1. Taking Charge of Adult A.D.H.D., by Russell A. Barkley with Christine M. BentonThis book, first published in 2010, is full of information and practical tools from Dr. Barkley, “one of the leading, if not the leading expert on A.D.H.D. in the world,” Dr. Saline said. It’s a “combo workbook/info book, which is great for people to get a better sense of who they are,” she said.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    Why Can’t My Friend Accept That My Disabled Son Has a Great Life?

    Put off by pitying displays of concern for her son’s paralysis, a reader wonders how to handle a well-meaning friend whose support misses the mark.Our son was partly paralyzed in a sporting accident as a teenager. Now, years later, he lives a full life — with friends, a job, sports and lots of fun. Still, when we socialize with a certain friend, our son’s disability is her main concern: We get sad eyes, soft touches and pronouncements about how brave we are. I know she means to be supportive, but it makes me uncomfortable. When I respond that his paralysis is not as problematic as she thinks, she goes on and on about how inspirational he is. Sometimes, it casts a pall over the room. Obviously, I am not uncaring about my son’s situation, but he is more than his legs. How should I handle this?MOTHERI think there may be two issues here: Your friend’s well-intentioned compassion — which you kindly acknowledge — seems to have tipped into pity. That would make many of us bristle. Pity carries a whiff of superiority. And I second your objection to your friend’s (implicit) judgment that your son is somehow inferior because he’s paralyzed. He seems to be living a full and happy life!Now, we can manage this first issue pretty easily. But the challenge comes — in my experience — because your friend may be frightened by your son’s disability: She brings it up endlessly because she can’t imagine how she would cope in your position. The prospect may unnerve her.So I would be direct but gentle with her. When you have some time alone with her, say: “You seem so focused on my son’s disability. We’ve all had years to process his accident. And look at what a fulfilling life he leads. You may want to consider why his disability strikes such a deep chord in you.” As you aptly put it, we are all more than our challenges.Miguel PorlanTable-Side Chat, or Tip-Gouging Enterprise?In restaurants recently, several waiters have delivered meals to our table and then proceeded to talk to us the whole time we were eating. In retrospect, I realize they shared — in great detail — their hard-luck stories. I wonder if they do this in hopes of getting bigger tips. I know times are tough, and I want to be sympathetic. But restaurant meals are treats, and we’d like to be left alone to enjoy them. Any advice? We don’t want to be rude.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    New York Is Failing to Meet Wheelchair-Access Goal for Cabs, Suit Says

    Officials had committed to making sure that 50 percent of the city’s taxi fleet could accommodate wheelchair users by 2023. A lawsuit says they have fallen short.Advocates for New Yorkers with disabilities have sued taxi regulators for falling short of complying with a legal settlement that required half of the city’s licensed taxis to be wheelchair-accessible.The suit argues that taxi regulators have shown that they have “no intention of even attempting” to meet the goal.On Wednesday, the group of advocates, which includes four nonprofits, filed a motion in U.S. District Court in Manhattan urging a judge to order the city to meet the requirement. Only 42 percent of active taxis can accommodate wheelchair users.“It is so disheartening that the city doesn’t want to be more than 50 percent accessible,” said Dan Brown, an attorney representing the plaintiffs. “The fact that they haven’t met the goal is really beyond disappointing and sad.”Jason Kersten, a spokesman for the city’s Taxi and Limousine Commission, said in a statement that the commission is “committed to accessibility.”“When you factor in our entire fleet, we now have almost three times the number of accessible vehicles than we did five years ago,” Mr. Kersten said. “We will keep working to make our fleet even more accessible.”We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    The Republican Search for Alternatives to Trump

    More from our inbox:Assad Should Be Reviled, Not RecognizedThe Overuse of Guardianship Damon Winter/The New York TimesTo the Editor:Re “How to Make Trump Go Away,” by Frank Luntz (Opinion guest essay, April 10):Republicans are tying themselves in knots trying to come up with candidates who can appeal to Trump voters but who are not Donald Trump. The latest effort is this essay by the Republican strategist Frank Luntz.I laughed and groaned when I read about the search for “a candidate who champions Mr. Trump’s agenda but with decency, civility and a commitment to personal responsibility and accountability.” Really? How could such a thing be possible?Mr. Trump’s agenda — if one can say he has an agenda other than himself — is one of building a power base by stoking grievance, resentment and division. It is inherently based on indecency and incivility.The last thing this country needs is a smoother, more effective version of Donald Trump. We need an agenda that brings us together to make America a better place for everyone, not just for some at the expense of others. We don’t need an agenda that divides, debases and weakens us, whoever the candidate.John MasonSanta Rosa, Calif.To the Editor:Frank Luntz’s eight suggestions to the Republican leadership on how to dump Donald Trump are well considered and rational. But one other rational thought that he omitted is the threat that Mr. Trump would run as an independent if he isn’t nominated for the 2024 presidential race. Even a small percentage of his hard-core base could crush the chances for a normal Republican candidate to win the general election.Mr. Trump is irrational enough to spend the funds he has raised already plus some of his own in a vindictive, spoiler candidacy. It’s not a mystery why Republican leaders don’t know how to escape their dilemma.Davis van BakergemSt. LouisTo the Editor:As one of the steadily increasing body of independents, I read Frank Luntz’s column avidly to see where there might be a case to be made on behalf of the Republicans. Unfortunately, there is an underlying premise that Donald Trump did a lot of good things for the country during his term.I fail to see them.True, the economy was in good shape before the coronavirus, but I ascribe that in large part to the hard work of the Obama years. The only program of note that Mr. Trump initiated was the tax cuts that sharply increased an already swollen deficit and that benefited our citizens who least needed the help. Far from helping the disenfranchised, he milked them for his personal benefit and widened the divide.Internationally, he alienated our longstanding allies in Europe. We are left with his “impact on the bureaucracy and judiciary.” Mr. Luntz must mean rendering governance ineffectual through starvation and converting the judiciary into a political body.Not my idea of a record to run on.Tony PellBostonTo the Editor:Thank you for this great piece. Everything Frank Luntz said resonated with me, a liberal residing among some very strong conservatives. He went the extra mile to really understand Trump voters and describe in great detail how a Republican candidate could succeed with them in a future election.It was very thought-provoking, and helped me gain an even deeper insight into my neighbors and their concerns. I will remember what he wrote.Mary HollenGreenbank, Wash.To the Editor:Frank Luntz offers messaging advice for Republican presidential candidates to attract MAGA voters away from Donald Trump: Listen and sympathize with Trump supporters, he says, emphasize decency, civility and personal responsibility. Acknowledge Mr. Trump’s successes and offer the mildest criticisms of his presidential record and personal behavior. “Make it more about the grandchildren” because these mature right-wing voters care about the kids’ future.No doubt there are disillusioned Trump voters who are ready for a different message, but how many? Racism, misogyny and apocalyptic nihilism are the hallmarks of Trumpism. Mr. Luntz’s advice is not only risible — adopt a liberal demeanor without the Enlightenment values — but also paradoxical. It presumes an electorate yearning for a kinder, gentler fascism. ​Geraldine MurphyNew YorkAssad Should Be Reviled, Not Recognized /EPA, via ShutterstockTo the Editor:Re “After Shunning Assad for Years, the Arab World Changes Its Tune” (news article, April 14):It is troubling to see that several Arab nations have chosen to embrace President Bashar al-Assad of Syria, whose tenure has been marked by unspeakable atrocities and egregious human rights violations. His reign of tyranny and terror should result in ongoing condemnation, not the newfound credibility that is being bestowed upon him by Syria’s Arab neighbors.Mass killings and widespread violence that have forced millions of people to flee their homes cannot and should not be overlooked when assessing the strategic importance of re-establishing formal relations with Syria and its rogue leader.Mr. al-Assad should be reviled, not recognized.N. Aaron TroodlerBala Cynwyd, Pa.The Overuse of Guardianship Rozalina BurkovaTo the Editor:Thank you for “A Better Alternative to Guardianship,” by Emily Largent, Andrew Peterson and Jason Karlawish (Opinion guest essay, April 5).As they note, the overuse of guardianship robs people of agency in their own lives. Those with guardians are left out of important conversations about their future, they don’t develop the skills necessary to make life choices and they are prohibited from entering into legal agreements, managing their money or getting married without the guardian’s consent.Because the individual has been deemed legally incompetent, the guardian signs any legally binding contracts, co-signs any disbursements and, depending on the state, may have to sign the marriage license.For people with intellectual and developmental disabilities, families are all too often counseled when their family member leaves school to seek guardianship.Nationwide data from the National Core Indicators indicates that among people with intellectual and developmental disabilities receiving services, a staggering 45 percent are under some form of guardianship. Supported decision-making, described in the essay, provides a much-needed alternative to this denial of rights and agency.Valerie J. BradleyCambridge, Mass.The writer is president emerita of the Human Services Research Institute. More

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    When Students With Disabilities Are Removed From the Classroom

    More from our inbox:Old People in Japan, and in AmericaHow Trump Will Campaign in 2024 Ricardo Nagaoka for The New York TimesTo the Editor:Re “Students With Disabilities Are Secretly Removed From School” (front page, Feb. 10), about “off the book” suspensions of these students:We are all too happy to reprimand school personnel for informal removals, but we fail to recognize the root cause of the issue.First, a classroom with one teacher responsible for about 25 kids does not work for everyone. Many students with disabilities need more support. Even if the practice of informal removals ends, as it should, those kids will still go back to classrooms that are not fit to serve their needs.Second, to create general and special education classrooms that set these students up for success costs money.Schools need more money for special education services, such as aides, behavior interventionists, school psychologists and counselors. Teachers and school personnel need to be paid more, so schools can attract and retain quality educators.Most teachers and principals are doing what they can within the reality of their circumstances. Instead of criticizing the individuals, we need to look at the system.More funding is the only possible solution.Lauren BrauckmannSomerville, Mass.The writer is a former elementary school teacher.To the Editor:The informal removal of students points to insufficient teacher training and cracks in the overburdened school system. Educators are teaching an increasingly neurodiverse student population. According to recent statistics, 89 percent of educators have at least one student with an individualized education plan in their classrooms.Students with disabilities often learn alongside their general education peers. While this is a win for special educators, who have long championed the academic and social benefits of inclusion for both general and special education students, teacher training has not kept up with these increases. All educators need and deserve comprehensive, systemwide training models that support them. We need to foster learning environments in which students feel an authentic sense of belonging.Some of the most effective training models are university-public school partnerships and professional development supports that offer educators the opportunity to learn about how best to support their neurodivergent students from the true experts: those with lived experience.The problem isn’t the student. The problem — and the opportunity for growth — lies in how we’re training and supporting that educator.Kristie K. PattenLauren Hough WilliamsNew YorkDr. Patten is a vice dean and professor at the N.Y.U. Steinhardt School of Culture Education and Human Development. Ms. Hough Williams is the executive director of the university’s Program for Inclusion and Neurodiversity Education.To the Editor:I teach high school science at a public school. Students with disabilities absolutely deserve a free and public education, like everyone else. But when the needs of these students aren’t met in a regular classroom, some can be disruptive or violent, and teaching them alongside regular education students becomes impossible.Why should the educational experience be ruined for 25 kids because one student became disruptive? Why should I be forced to educate all of these kids together when they clearly have different needs, and therefore I can meet none of them? These issues are so severe that teachers are quitting in droves and public schools are failing.In spite of this crisis, The Times chose to publish an article blaming teachers for something we have little control over. As a teacher, all I can do is show up and do my best with what I have and with who is in my classroom. Administrators have the power to remove students or dole out accommodations — not I.Jessica FlemingHoustonTo the Editor:I worked for many years in a private school in Boston that served disabled students. It was one of the best work experiences of my life.Although the students came to the school with cognitive, social and communicative difficulties, their greatest obstacle was clearly a sense of low self-worth. After years of failing both academically and socially in regular school settings, they were finally placed in our program, which met their most fundamental needs and grew their positive self-esteem.Not everyone is verbally and academically gifted. Integrating disabled students in general education is certainly important, but not at the cost of damaging a child’s sense of self-worth.Theodore MarkusStuart, Fla.The writer is a retired speech language pathologist.Old People in Japan, and in AmericaYusuke Narita, wearing his signature eyeglasses with one round and one square lens. He said his comments about mass suicide and the elderly had been “taken out of context.”Bea Oyster for The New York TimesTo the Editor:Re “Scholar Suggests Mass Suicide for Japan’s Old. Does He Mean It?” (front page, Feb. 13):Japan needs to overhaul its laws about how to treat elderly patients who are terminally ill or brain-dead and on life support, so they can die with dignity.At the moment, it may be considered murder if a doctor decides to take a patient off life support (the family cannot make these decisions), and doctors have been prosecuted for doing so. Advanced directives are meaningless since they are not accepted if the outcome of refusal of treatment ends in death.Inherent in Japanese culture is the hierarchical structure of respecting elders and pride in longevity. These societal values are at odds with the practical, medical and emotional needs that the elderly and their families find themselves in when they are faced with situations that offer no recovery.The comments about mass suicide by Yusuke Narita, an assistant professor of economics at Yale, may be extreme, but I believe that he is attempting to initiate a discussion among the Japanese, particularly the legal and political establishments that have been unwilling to resolve the crisis facing the elderly in that country.Shirley KanedaNew YorkTo the Editor:While the comments quoted in your article are extreme, I do believe that older people should have the ability to end their life painlessly and on their own terms.Prove illness, explain your reasons and get help. Do not become someone waiting to die or lying in bed with unremitting pain, no longer enjoying life and taking away from others.I am a healthy, financially stable 80-year-old citizen and would be relieved to know that I would have that option. My family agrees.Myra LevyRockville Centre, N.Y.How Trump Will Campaign in 2024 Damon Winter/The New York TimesTo the Editor:Re “Will Trump and Biden Gang Up on DeSantis?” by Ross Douthat (column, Feb. 12):Mr. Douthat’s preview of Donald Trump’s 2024 campaign strategy argues that he will emphasize his Republican opponents’ unpopular past policy positions when running against them.But this analysis gives far more credit to Mr. Trump than he deserves. While those policy shortcomings and differences clearly exist, when has he ever focused on policy issues?His style is to make personal aspersions and to launch fabricated assaults on his foes and their family members. He’s not about to change that modus operandi, as reflected in his insinuation the other day that Gov. Ron DeSantis of Florida preyed on teenage girls years ago when he was a teacher.Just as leopards don’t change their spots, our former president is not going to be spotted highlighting policy differences when he can take the low road that so naturally suits him.Marshall H. TanickMinneapolis More